Jolene’s MS treatment journey

  • £3,095.00
    raised of £30,000.00 goal goal
10% Funded
89 Donors

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities

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Jolene Masson from Shetland was diagnosed with Multiple Sclerosis (MS) in 1984, at 7 years old, at a time when MS in children was unheard of.

She has experienced physical disability including loss of power in her legs, making walking extremely difficult or impossible at times. Also the loss of power in her arms making the simplest of tasks challenging. With years of nerve damage she suffers from what she can only describe as the feeling of "pins and needles" in both her feet, which is constant and although on medication to help dampen the feeling she is still aware of it.

Jolene is planning to go to Mexico to undergo Hematopoietic Stem Cell Transplantation (HSCT) to help halt the progression of her MS, in December 2016.

The treatment will involve chemotherapy to completely destroy her immune system before rebuilding it with her own, previously stored, stem cells. The treatment isn't without risk but it's a risk worth taking to hopefully end the 33 years of her suffering from the effects and uncertainty of this progressive condition.

The total budgeted cost will be around £70,000. The cost of the treatment alone is £40,000 with travel to Mexico and accommodation an additional cost. (Jolene will be in Mexico for a total of 5 weeks to undergo the treatment). Aftercare involves 5 Rutuximab infusions and will cost £5,000 plus travel and accommodation costs from the very north of Scotland to the private facility in England to receive this care.

Any donation received is greatly appreciated.



Organizer

  • Michelle Johnson
  •  
  • Campaign Owner

Donors

Amount Hidden
  • Elinor Nicolson
  • Donated on Jan 09, 2017
  • Theo and I wish you every success with the treatment and a happy healthy 2017.

Amount Hidden
  • Thelma Pointer
  • Donated on Jan 08, 2017
  • Thank you for being a pioneer in having this stem cell treatment and helping in the research to find cures for neurological diseases.

£10.00
Dec 12

Treatment has started

Update posted by Michelle Johnson at 11:38 pm

Last week Jolene travelled to Mexico to begin her treatment journey. It started on Monday with an appointment at the clinic, followed by meetings with various professionals: neurologist, cardiologist etc. Also an MRI scan and blood tests.On Friday chemotherapy started and was repeated again on Saturday.On Sunday Jolene received the. . . . .

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0
Nov 08

3 weeks until Mexico!

Update posted by Michelle Johnson at 12:13 am

A huge thanks to everyone who has donated so far, we have now reached over £2,000 on this page alone, which is fantastic! Friends and family (and Jolene!) have been busy with other fundraising events too: a variety concert in the 'big kirk', Sunday teas, sale tables, raffle, quiz sheets

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0

Donors & Comments

89 donors
Amount Hidden
  • Elinor Nicolson
  • Donated on Jan 09, 2017
  • Theo and I wish you every success with the treatment and a happy healthy 2017.

Amount Hidden
  • Thelma Pointer
  • Donated on Jan 08, 2017
  • Thank you for being a pioneer in having this stem cell treatment and helping in the research to find cures for neurological diseases.

£10.00
  • Anonymous
  • Donated on Dec 31, 2016
  • Hope everything goes brilliantly. Xx angela and Grahame tate ( Ingrid hendersons friends ) happy new year.

Amount Hidden
£20.00
  • Anonymous
  • Donated on Dec 21, 2016
  • All the very best with this treatment -as a physio it'll be very interesting to see /hear about the results

£10.00
  • Anonymous
  • Donated on Dec 20, 2016
£10.00
  • Anonymous
  • Donated on Dec 16, 2016
  • Good luck, hope everything goes well

£30.00
  • Jenny Keldie
  • Donated on Dec 15, 2016
  • Wishing you well, Jolene!

£20.00
  • Joe Napier
  • Donated on Dec 15, 2016
  • Thank you for all the times you came into my garden to push me on the swing when we were both Peerie bairns Jolene. Stay strong Jolene and cuddles and best wishes from Joe (typed by me mam!) xxx

£100.00
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Followers

21 followers
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£3,095.00
raised of £30,000.00 goal
10% Funded
89 Donors

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities