Hello to all who continue to provide your love and support to Benny, myself and his family. I wanted to provide an update on the direction of Ben's health and treatment plan. Ben has truly fought the good fight and has fought as hard as he could, and we have explored all options available to us. He has given it much thought he has at this point quality of life is more important than any other treatments that he would have to go through, so he has made the decision to start the process of in-home hospice.
We are going to take this time to enjoy life as much as possible and do all the things Benny wishes to do with his remaining days.
Please send him your love and support to this email address as he is still checking his emails and he would love to hear your kind words, even if it is just sharing a good memory of time you have spent with Ben: [email protected]
One other thing I would like to ask all of you who are supporting Ben is to dedicate a song to him. Choose a song that either you really like, your favorite song, or a song you think he would like. Music is a big part of Ben's life and is a bigger part of his life in recent weeks, it helps him keep his spirit up. From your song dedications I am going to build him a playlist using Spotify so we can keep the tunes going. Ben really enjoys classic rock, alternative rock, and electronic music (Exceptions - no country songs please).
Thank you all for your continued love and support.
Ben's loving wife Nikki
I wanted to provide an update on Benny since it has been a scary couple of days.
This past weekend Ben was admitted to the ER for bleeding in his mouth from a biopsy they took last Wednesday. He is okay now and we are monitoring the bleeding at home. They thought that the mass in Ben's mouth could be mouth cancer, and we have been sitting and waiting to hear results until yesterday.
What we found out yesterday from the doctors is that Ben does not have mouth cancer, but he has Osteonecrosis which has been caused by the avastin (chemo) he has taken since February. He now needs to decide how he wants to spend the rest of the time he has left and his quality of life. Ben is still debating what he wants to do, I will provide an update when he decides.
Please keep us in your thoughts and prayers
Hello to everyone who has provided with their generous donations. Ben and I are completely humbled by the outpour of love and support we have received this week. With a small portion of the money we were able to purchase a lift recliner chair which Ben is very excited about it. In fact he was brought to tears of joy after we purchased it, he had a smile on his face the rest of the afternoon, a smile I have not seen in a while, which warms my heart. He kept thanking me, but really we should be thanking all of you for your generous donations that made it possible. It might be a small thing that helps Ben be more independent and safe, but totally worth it. I will provide updates to come in the future, I just wanted to take a moment to thank everyone for their kindness, love and support, we couldn't do it without you.