Love for Lillian
Fundraising campaign by
Jamie Delarwelle
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US$560.00Donated So Far
Campaign Story
Lillian Evelyn Rose Prue was born on January 7th weighing 3lbs 7oz. In utero she was diagnosed with a severe heart condition called tetralogy of fallot, meaning 4 significant problems with her heart requiring surgery. She was also diagnosed with a very rare genetic disorder with 9 other children in the world. This has made her heart condition much more complex. We have been in the hospital nicu since her birth and she was able to have her first surgery on March 13th which lead to 3 more heart surgeries and then 3 surgeries on her intestines. As her mother I have stayed by her side doing everything I can to help her heal. Her father is working full time to pay the bills. Previously living on two incomes we are finding it difficult to make ends meet and afford her dad to travel to the children's hospital in Milwaukee to visit. We would very much appreciate help in any way. I have created this page for friends family and others who cannot be here with us in this difficult time. Thank you for your support.
Organizer
- Jamie Delarwelle
Donors
- Anonymous
- Donated on Oct 18, 2016
- Anonymous
- Donated on Sep 30, 2016
- Anonymous
- Donated on Sep 29, 2016
Keep strong! What a tough little girl born to tough parents! We're still praying for your family. My brother, who I never got to meet, had tetralogy of fallot, so this is close to my heart. I love seeing her pictures!
Update on Lillian
Update posted by Jamie Delarwelle at 02:03 amLillian is now 10 months old and working hard everyday to meet the appropriate developmental milestones. When she turns a year old we will have another assestment done to track her progress. Lilly has finally begun the experience of eating solids and it's a slow process. We should be getting. . . . .
In need of help...
Update posted by Jamie Delarwelle at 08:46 pmThank you for all the thoughts and prayers. As most of you know, Lillian was hospitalized from birth to almost 5 months old. She left the hospital with a g-tube, ostomy, many scars and medications as well as a long list of appointments to attend in preparation for her next. . . . .
Second hosital stay
Update posted by Jamie Delarwelle at 08:31 pmThank you all for your continued support for our family. As most of you know Lillian has been in the hospital from birth to 5 months old, due to a complicated diagnosis and issues with her surgeries. She is now back at the hospital for her second hospital stay and. . . . .
Donors & Comments
- Anonymous
- Donated on Oct 18, 2016
- Anonymous
- Donated on Sep 30, 2016
- Anonymous
- Donated on Sep 29, 2016
Keep strong! What a tough little girl born to tough parents! We're still praying for your family. My brother, who I never got to meet, had tetralogy of fallot, so this is close to my heart. I love seeing her pictures!
- Christopher, Sevgi & Quentin Bell
- Donated on Apr 15, 2016
Wishing you all the best! with love, Christopher, Sevgi & Quentin
- Katie Geurts
- Donated on Apr 08, 2016
I have and will continue to pray for little Lillian and her whole family to keep strong. I work with Jeremy, don't know how he does it but he holds it together while trying to work ten hours a day. Lillian will heal and thrive! She's strong like her dad!! My heart goes out to you all! ❤️🙏
- Janelle Gwinn
- Donated on Apr 07, 2016
You came to mind, so I stopped to pray, I asked the Lord Jesus to make you a way. To give you his peace and his strengthening grace, to give you endurance while running this race. I asked him to help when the path seems unclear, to bring reassurance he'll always be near, To show you each promise he's made will come true... I'm praying, in all things, He'll carry you through. (A prayer I found that seems so befitting to you....Love from Aunt Janelle)
- Tony and Lisa Ghiringhelli
- Donated on Apr 07, 2016
Thinking of your family.
- Erin & Michael
- Donated on Apr 07, 2016
Jamie, We're praying that you get the support you need--financially & otherwise. Sending our love to you and Lillian and everyone there. Erin
- Joanne Meni
- Donated on Apr 07, 2016
Lillian your a fighter keep it going. mom & Dad keep strong. Keeping positive thoughts for this little person & her parents so they can all be together at there home.
