It's World Parkinson's Disease Day today, Please take the opportunity to donate to this project before Saturday Apr 30th. and please give a thought to the many others currently suffering with "Parkinson's" This disease affects an estimated 10 million individuals worldwide – 100,000 in Australia, and 30 Aussies are diagnosed with the disease very day.
Good news. We have a Health Link Teleconference in May with our Townsville neurologist, ourselves and the Brisbane neurologist. All going well, we can discuss the risks involved, reasons for and against this operation, the desperation and frustration of this degenerating disease, and all make a informed decision. We can only hope that all things taken into consideration, that Ted will still be a candidate to give him some quality of life back in slowing this disease down. Fingers Crossed. Ted and Ra-Chel xx
World Parkinson’s Day – on April 11th is to shine a light on Parkinson’s disease and encourage everyone to get behind this disease and support and understand. Please take the time, effort and interest in learning more of this disease by either supporting Dad and his Parkinson's or supporting this very important Day to raise money for research.
Many people associate the disease with an elderly relative or the odd celebrity on TV. The majority of the population understand it to be ‘just the shakes’. The reality is much different and frustrating.
Parkinson’s is the second most common neurological disease in Australia after dementia.
The disease affects an estimated 10 million individuals worldwide – 100,000 in Australia.
30 Aussies are diagnosed with the disease every day.
20% of sufferers are under 50 years old and 10% are diagnosed before the age of 40.
The number of people with Parkinson’s has increased by 17% .
For comparison purposes the prevalence of Parkinson’s is greater than prostate, bowel and many other forms of cancer and the total number of Parkinson’s sufferers is 4 times the number of people suffering with MS.
World Parkinson’s Day puts Parkinson’s in the spotlight and offers Shake It Up Australia supporters a chance to raise much needed funds for Parkinson’s research.
Saw our GP today who is also agreeing to push for the Deep Brain Stimulation. As we know there is a High Risk involved, but it is the last hope that we have to slow down the effects of Ted's Parkinson's Disease. Let's hope we can all come to the same conclusion that we are at the end of the rope and something needs to be done to give Ted some quality of life, at least for a few more years. Fingers crossed we get the outcome we are looking for.
We have returned from the neurologist today with a disappointing No from Brisbane, to doing the operation. The reasons where said that Ted is High Risk. Whilst it is not what we wanted to hear, we are not closing the door on this just yet. Our Townsville neurologist and GP will continue to follow this up with the Neurologist in Brisbane. So for now, we will stay positive for a turn around result.
We will be seeing our neurologist tomorrow, March 7th here in Townsville. Hopefully, the doctors will be able to confirm whether he will be considered for the DBS surgery or not. There is some hope for a better quality of life being his next and only option. Deep Brain Stimulation (DBS) surgery in Brisbane. Again, this is not a cure, but can delay and sometimes reduce the severity of the shakes, the swaying slurred speech, bad hand/eye co-ordination and the list goes on. This brain surgery has been proven to significantly improve Parkinsonian symptoms in patients who have failed medical therapy. The surgery involves inserting a permanent stimulating wire into the brain which is then attached to a pacemaker box in his chest. Ted’s medication is no longer satisfactorily controlling the symptoms of his Parkinson’s so there is hope that he will be a candidate for this brain surgery. However, the procedure is complicated and is not suitable for everyone, plus there are other medical complications that may prevent this surgery from happening.