spencer funds

My three year old was born with Klippel trenaunay webber Syndrome a very rare syndrome that is different in almost all cases. With spencer it effects his balance as he has one leg longer and more chuncky than the other so he has special shoes which are made to fit but spencer has been constantly let down by the NHS system, being left with no shoes that fit him comfortably, leaving messsges to arrange appointmens because noone answers the phone or rings me back,so im looking at going private as spencers feet are just too chunky for regular trainers ect. Its not spencers fault he has this illness yet he is suffering.I formed this page and a group for two reasons firstly to try and make people more aware of rare disuses and syndromes that some people live with on a day to day basis. Secondly im tying to raise some money towards what im going to need in order to get spencers footwear privately. However last summer when I inquired I was quoted £105 a pair... so this is my challenge. Im going to put together raffles/tombolas so keep checking the page for updates and results and im also finding out about doing fun day events. So feel free to help every little will make a mass difference :-)

http://www.facebook.com/SpencersFund