Matts Hope for HH Liverpool Marathon

I am running the 2015 Liverpool Marathon in aid of Hope for Hypolathamic Hamatoma.  Hope for HH is a charity which supports sufferers of a rare benign brain tumour.  Unfortunately there is limited knowledge of this condition due to its rarity which has resulted in misdiagnosis and incorrect treatment in a high percentage of cases.  The charity has been set up with the aim of raising awareness within the medical profession and providing support to sufferers and their families.   One of my close friends is a sufferer of this condition.  She was misdiagnosed until the age of 31, by which time she had already undergone brain surgery to remove the part of the brain which was thought to be the cause of her siezures. Only after the surgery was it discovered that the source of her epilepsy was in fact a hypothalamic hamatoma.  She continues to have multiple daily siezures as well as having to deal with the  permanent  effects resulting from the surgery.  Despite this she continues to work and bring up two young girls even with the struggles that the condition brings.   Often the symptoms begin when children are very young and unfortunately are not dissimilar to those linked to autism and other behavioural disorders. She is determined to help stop this misdiagnosis so that patients are offered the correct treatment sooner rather than later, and has set this charity up with this purpose.