Sydney’s Post R.E.D Celebration Vacation
Fundraising campaign by
Jerry Carchi
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US$2,640.25Donated So Far
Campaign Story
This is a fund raiser to help Sydney have a Disney Trip of her Dreams. In a about a year from now Sydney will be having a major craniofacial surgery to help advance her mid-face. This surgery will require her to wear Rigid External Device also known as R.E.D. The device is a metal bar with a halo that goes around the front of her face. Sydney will have to wear R.E.D. for 2-3 months as we advance her mid-face and then keep on for her bones to heal and set into place. Sydney's face will change but, not so dramatically that you can't recognize her beautiful face. This surgery will be hard on her and we want her to have something to look forward too. Our princess loves Disney and especially the princesses that inspire her to be beautiful, smart, funny, caring, brave, and strong. We are aiming for this Disney Dream Vacation to come a few months after Sydney recovers from her procedure, which we hope it will be around Nov. 2014.
Thank you for generosity
Jerry, Virginia, and Sydney
Organizer
- Jerry Carchi
- Jersey City, US
Donors
- Anonymous
- Donated on Apr 16, 2019
- Lisset Torres (Premier Designs Jewelry)
- Donated on Jun 24, 2014
So happy to have been able to help in this goal. May God bless Sydney and her loving parents.
- Lourdes and Joe
- Donated on Jun 09, 2014
We love you Sydney!
Check up on Tissue Expander
Update posted by Jerry Carchi at 11:28 pmWell it was an easy day for Sydney. The incisions have been healing and no more tissue expansion. Sydney is set for her surgery on October 3rd and blood work on October 1st which will be tough on Sydney but I beleive she is tougher than that.
Tissue Expansion Day
Update posted by Jerry Carchi at 05:07 pmWell today was better than last week. Sydney is healing well and we expanded only the one side of her tissue expander. Sydney was in better spirits after we were done and went to have lunch in the cafeteria.
Tissue Expansion Day
Update posted by Jerry Carchi at 11:10 pmTuesdays are tissue exansion day. Last week one to the insicions opened up and doctor wanted to look at it today to make sure no infection was building up. Well so far so good with keeping wound clean and no infections. We were able to start up expansion today on. . . . .
Process of Reconstructive Surgery
Update posted by Jerry Carchi at 10:29 pmThe link below talks a little more about Pfeiffer Syndrome and what the surgical treatment a person has to go through. Sydney has had 5 surgeries in her young life so far. She will be having her sixth surgery coming up in about a month after her tissue expansion has
Link to Understanding Pfeiffer Syndrome
Update posted by Jerry Carchi at 09:58 pmThis link talks about what Sydney's syndrome. Pfeiffer Syndrome is a genetic mutation that effects the genes that develope bone structure. 1 out of 100,000 children are born with this genetic mutation. http://en.wikipedia.org/wiki/Pfeiffer_syndrom X http://en.wikipedia.org/wiki/Pfeiffer_syndrom
Donors & Comments
- Anonymous
- Donated on Apr 16, 2019
- Lisset Torres (Premier Designs Jewelry)
- Donated on Jun 24, 2014
So happy to have been able to help in this goal. May God bless Sydney and her loving parents.
- Lourdes and Joe
- Donated on Jun 09, 2014
We love you Sydney!
- Pedra Del Vechio
- Donated on May 25, 2014
- Diana Mastricova
- Donated on May 17, 2014
- Jaysun, Nani, Jeff & Baby Lahm
- Donated on Apr 28, 2014
"When the raindrops come tumbling, remember you're the one who can fill the world with sunshine."-----Snow White----- We love you Sydney! May all of your dreams come true! Hakunamatata, Jaysun
- Christine Capone
- Donated on Mar 27, 2014
- Alberto & Rachel Canal
- Donated on Mar 15, 2014
Sending you love and prayers from our family to yours.
- Jennifer Reyes
- Donated on Mar 15, 2014
We love you! XO
- Tia Patty
- Donated on Sep 29, 2013