Apr 08, 2020 at 03:38 pm

April 8, 2020 - Post Chemo update + Frequently asked questions + receipts!

Update posted by Philip Joseph Tumacder

As much as I wanted to update immediately after the treatment, I wanted to personally assess what may have changed within a couple days. I'm happy to announce that the pain has definitely lessen!
There is still obvious pain, but as Dr. Damian, Dr. Manuel, and Dr. Hufana explained, and in short, the cause of CIDP is that my own immune system attack the nerves of my body and directly destroying them in real time, and with this chemotherapy, which renders me immunocompromised, allows my immune system to cease all attacks. Thus I have no more immune system to cause pain and destruction.

FAQs:

You might ask,"But then why are you still in pain?"
Before the treatment, my immune system has been on a rampage for almost a year. So in other words, there is a year of damage to be repaired. Sadly, there has been permanent damage such as my left foot, both legs, and some fingers. Those permanently damaged will no longer return and I most likely can never feel touch again on specific places. On the bright side, I no longer fear losing my right foot, my legs, or the rest of my hands again, which I had constantly feared every second of my days before!

"So what now?"
Now it is the time to recover.
My body had no rest for the past year, and now it can.
I still continue the pain medication plus the many other I have been diligently taking, but now also take many supplements prescribed to boost the healing and regeneration process.
My immune system will slowly recover in the future and then CIDP continues once again, and that is why I must return back to the Cancer Institute to receive another treatment. This may happen once every 3-6 months, but I read that some had been in remission for over a year, so please hope and pray for the best along with me.

"What about the IVIg? Why are you going through chemotherapy instead?"
Even though we've received such a vast and generous amount of help and blessings from the many kind souls out there that heard our pleas, being able to afford and maintain the IVIg has become unrealistic and unobtainable. If we waited until IVIg was possible, I know by then I'd lose much more of my body. A huge thanks to Dr. Damian from giving us this option that competes with the IVIg at only a fraction of the price in comparison!

"Wait go back for a second. This treatment makes you immunocompromised indefinitely?"
Yes! I traded the very thing that is supposed to protect me from disease, viruses, cancer - everything to stop CIDP progression! The pain was enough to make me not look forward to another day, but the night after the treatment, I slept without interruption for the first time in so long. Nothing else gave me that peace and happiness in a long time and I don't mind being more careful with my life from now on just to maintain that.

These have been the most asked questions recently and I would happily tell all that had helped and are willing to help!

I've also had a few questions regarding receipts and proof of price for more transparency.
I completely understand because it is your money that has been given to be used, and if I were in your shoes, I too would like to see that my donation had helped! Here are the receipts and the discharge papers of recent:


The total cost of the entire treatment was 104,986.20 php
The followup tests will be around 10-15k in about 9 more days.
If my immune system (CD20) is still too high, then there will be another need to do the chemotherapy a second time. Dr. Damian did say its rare, but still a possibility to be aware of. Hopefully I don't need to go through it twice a session!


Thank you all for your continual love and support.
This would have not have been possible if it weren't for you.

All of our love and thanks from me and my family!
God bless you













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