Mar 30, 2020 at 09:09 am

March 30, 2020 - ​It's finally happening!

Update posted by Philip Joseph Tumacder

I was supposed to have my treatment weeks before, but you all know the case that is unfortunately plaguing every nation today.
The rampage of the Corona-virus has made it difficult for many of us such as those with chronic pain and illnesses, cancer patients, and a slew of others to get the treatment and help they need. This also included me with my autoimmune disease (CIDP) that was only diagnosed just earlier this year.

Recap of what happened during the passed few weeks.
I had a major infection at the site of where I had my root canal treatment last year.
Since I'm immunosuppressed, the infection went rampant and destroyed much of my jaw within just a few days.
I had to have emergency dental surgery to remove my tooth, the granuloma mass, and even part of my jaw bone due to the infection. That was a very important procedure to do since I cannot have any pre-existing infections during chemotherapy since it'll make it much worse. Other than that, I've been rationing on medication since panic buyers have taken much of the pharmaceuticals, still in great neuropathic pain every minute of my day, and additional numbing paralysis continuing mostly on the left though much slower than before since I started corticosteroids and azathioprine.

Also, my scheduled Physical Therapy was suspended and postponed due to the risk of acquiring the COVID-19. It saddens me because I truly want to walk again without my crutches or the wheelchair.

On the plus side, the operation site on my foot has FINALLY CLOSED! Over 2 months sheesh!
After this experience, I've value a normal immune system so much more and definitely took it for granted when I was healthy.

I want to take this time to thank everyone for doing their part in this crisis.
Thank you for taking the precautions of washing your hands, disinfecting, wearing masks when outside, and keeping the safety and health of those you come into contact secure.
Most of the world has a competent immune system that can naturally fight off viruses, but the elderly with lowered immune systems due to age, and those with autoimmunity that have no choice but to destroy their immune system to survive, as well as the cancer patients, dialysis patients, and the many others out there that need to travel to be treated on a daily basis - On behalf of them all, I want to extend my sincerest thanks for doing your part and saving lives.

I would like to give a big thanks the Dr. Manuel and Dr. Damian for staying in contact during the quarantine and making sure I get the help and treatment I need amidst all this.

I've been a bit shy to speak and relied on my good friends and loving family to being my voice on social media.
But, I'll try to be more open again. Feel free to AMA! (ask me anything)

Thank you for taking your time to lend a hand while I, and many others, are reaching out.
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Here is the link to my GoGetFunding Campaign to help donate towards my treatment goal and to read my experiences with CIDP (just sharing too does so much for us):
https://assets.gogetfunding.com/help-philip-get-treated-f...

More information on what CIDP is on rarediseases.org here:
https://rarediseases.org/rare-diseases/chronic-inf...

Here is my little sister's ko-fi where she's running a co-campaign towards my treatment:
https://ko-fi.com/visodette

Here is a link for all Hospitals in the Philippines that need your help:
https://www.flipscience.ph/news/covid-19-donations...

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