Mar 02, 2020 at 09:33 am
March 2, 2020 - Physical Therapy and treatment option!
Update posted by Philip Joseph TumacderTHIS WEEK I'LL OFFICIALLY BEGIN PHYSICAL THERAPY!
Dr. Hufana (neurosurgeon) along with Dr. Manuel (neurologist) have been always reminding me that I'm in a very special case with numerous illnesses to deal with along with the greatest fight - CIDP. The one we didn't foresee was my quickened inability to walk. Its been well over a month now that I haven't been able to even stand on my own two feet. My neurosurgeon can't pinpoint why this and how it happened, but now we're seriously pushing to begin rehabilitation on my legs ASAP.
I'm very excited to have hope to walk again.
Oh yeah, if any of you see me with long hair, I did so intentionally.
The length has shown the amount of time its been that I haven't been able to walk, and if you see me with my hair-up and styled like before, you'll most likely see me walking with a fresh new look!
Dr. Manuel has opened other options with the IVIg that might be a little more cost effective, but for now, she has referred me to Dr. Damian who is a neurophysio that can more in-depth understand my case through my biopsy and electron microscopy along with the EMG and CV results.
Today, I will plan a schedule with Dr. Damian as soon as we have the means to start the first treatment which we have all been working together for. The first cost will be around 400-600k PHP. It will be a 5 day procedure once I can go through it.
In other painful news, the pain has become considerably worse since I stopped the steroids. I thought my right leg would be next but it has been my right arm and hand that has been getting the slow end that I felt happened to my left foot before. I've been advised by other CIDP survivors of supplements that can help (which Dr. Manuel has approved and agreed with as antioxidants), reducing my stress as much as I possibly can, and with spending time and speaking more to my supportive family and friends.
Also, I'll probably be in a wheelchair soon.
Time to see the world in a small person's perspective LOL
Please continue to help me and to spread the word of this campaign.
Thank you all that have given me their love and support throughout this battle.
All your kind words, prayers, and advice has done great healing towards my physical and mental health during this struggle. I see and hear every word even if I'm unable to reply directly.
Once again, thank you all and may you be blessed many times over.