Jan 11, 2020 at 04:19 pm

Let us help Sean experience the teenage life

Update posted by Czantal ones

Sean ,14 year old is a typical teenager who loves hiphop music and love to dance ,on July he was diagnosed with pneumonia and took some medications for a week,2days before the scheduled follow up check up he told me that he fell-down on the floor he felt that his legs shuts down that was the day that his legs got paralysed the doctors said that he had a TB and suspected to have Duchenne and after 3days of monitoring his condition there is no sign of improvement while taking medications and it is getting worst , that made me decide to rushed him to Manila Adventist Hospital ER we were referred to see a Specialist (Pediatric Neurologist) to know if he is positive of Duchenne unfortunately they don't have MRI so they asked me to transfer him to a different Hospital that has MRI and that was in Manila Doctors Hospital ER referred to Dra. Rhea Angela Salonga-Quimpo and after 6hours of monitoring at Aug 9,2019 he was admitted before undergo to MRI scan and Dra.Quimpo made some test and justified that he doesn't have Duchenne but a spine and bone fractions so she referred another doctor Dr.Ignacio (Orthopaedic) and requested for a SKELETAL SURVEY and after all the scan and test they saw that Sean is positive of POTTs DISEASE and needs to undergo a Spine surgery (posterolateral decompression and anterolateral fusion with instrumentation) the pedicle screws worth P220,000 and we need to provide the pedicle screw before we can have a schedule for his operation as of now he is still under medication and still need to continue taking it for 9 month ,if his spine wont be fix he will be forever lying down ,I will never see him stand ,walk and dance again ,I am pleasing for your kind hearts to include my son in your prayers and help me support Sean's battle against Pott's disease with compressive myelopathy .He is still bedridden because of his current sickness but he is still positive that he will be OK soon because Sean knows that there are so people that love and care about him and recognize his warrior heart ,many have asked how to contribute and want to help us .Fund raised will go towards medical cost ( Spine surgery / Antituberculosis chemotherapy ) and general supplies.


to contribute outside this page you donate thru bpi savings account.

Account name:Ricelle Barredo Ones

Account #: 8199-2999-06

or GCASH # 09613831756

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