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I'm gonna be on TV!
Update posted by Leslie Wille On Dec 21
Today, I got a phone call from a reporter at WKBW, asking if she could come interview Milo and I! Thanks to a coworker making a last minute switch, I was able to leave work a little early and make it happen. As I walked through the door, Milo bounced toward me and yelled, "Mom! I'm gonna be on TV!"

Just before the interview started, he held my hand under the table and I whispered to him, "will you keep holding my hand? I'm a little nervous." He said, "I'm nervous, too."

He quickly warmed up and was more than happy to talk about the bills, give his superbowl predictions, and share his favorite player, Ed Oliver. He grinned ear to ear as we watched the segment later on. You can watch it yourself here : Video

We are still waiting to hear from the doctors about their recommendations for treatment. The waiting is excruciating. We've reached out to various places (as have they) for second opinions, and have received confirmation of the diagnosis of Papillary craniopharyngioma (very unusual in children!) from St. Jude's in Memphis. On Monday, we will return to Oishei for a post-op MRI. I am a bit anxious about it, but will be relieved to have a better idea of what's going on in there while we wait. Neither Milo nor I are excited about him having to go under general anesthesia again. Thankful for the rallying of support behind us to give us strength during scary times!

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