Hi Everyone,

Aiden has been getting his injections daily, but there has been no clear indication of it working. Aiden remains at 7,7kg - the same as before he started with the treatment. He might have grown slightly in length, but it is very subtle.

Currently we are waiting for confirmation from the medical aid to see what they will approve to pay in terms of the follow-up tests and appointments. The dosage of the medication might need to be adjusted.

The last time I video called my brother and sister—in-law Aiden was dancing and having a good time listening to the “Gummy bear” Song 🤣

He is a true survivor and he loves life! I hope to meet him and his brother in person someday! 🥰🥰

Please keep sharing our cause - Aiden’s journey is going to be a long one.

Lots of love

Juanita

Aiden’s Aunt