Frustrated does not even begin to explain how we feel... we were informed by Dr Khan yesterday that Shaun will be on a 5 year waiting list if he is operated on in a government hospital.

It makes me more determined to get Shaun medical treatment privately. How on earth do people wait in pain for 5 years for an operation!

We have multiple fund raising efforts on at the moment. Please take a few moments to share them or invite people on facebook - our main event is coming up at the end of July

Here is a link to the facebook event https://www.facebook.com/events/347944205793461/

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