Apr 29, 2019 at 11:35 am

hope never dies

Update posted by Svitlana Rusakova

thank you so much for all those who already participated and donated online and offline!! Anhelina keep smiling to her parents but desperately needs injections of Spinraza produced by Biogen. We wrote to the manufacturer as the company has special programs for infants in life threatening conditions (like Anhelina's case) but this program can't be applied in Ukraine as Spinraza is not certified here. The only hope to get this treatment is abroad and that could be possible only with your donations. We all keep fighting for Anhelina's life!

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