Aug 11, 2019 at 07:37 am

Update on 25 June - Edwin’s Sister

Update posted by Edwin Chen

I would very much like to give an official update but I have been logged out of the account and I can’t remember the password and my brother is not in the best state of mind to talk to anyone. It’s been two months since he was discharged. The two months has been a period of routines for him and he tries his best to stick to routines and go for all the hospital appointments (2-3 times a week) although he often does not feel well in the mornings. He still gets pretty sick in the morning, fever and pain but he would feel better in the afternoon. More recently, he’s getting joint pains and he has the patches on him constantly to alleviate the pain. However the pain can get very intense in the early mornings and the family has been waking up to his screams and shoutings from 4am to 8am. He has also been coughing and it was getting worse and a recent ct scan finally revealed that there is infection in his lung. He is losing hope. And being a family that is predisposed to depression, his mental state is not ideal either. Yesterday I read an online forum or discussion thread regarding my brother’s crowdfunding and there was someone who said that he would not donate as he has seen my brother in the wards and he thinks there are others who deserve it more than him. I was angry - how much do you know about my brother, about my family, to have made that comment? If you didn’t know much, how about just keep your comments to yourself, rather than hurting my brother and us? Similarly, I keep my comments whenever I read about other people in difficult situations because we are not them, we don’t know how difficult it can be. This guy said he saw my brother in the wards.. is he a patient? Or a caregiver? Perhaps then he is going through tough times himself and was sort of venting - but please don’t be impulsive with your words: they can hurt. Words on the internet stay around for a long long time. More than raising funds, this crowdfunding raises hope for Edwin and the family. Yes, the money will go towards his future transplant if possible; but in the meantime, every contributor (no matter what’s the amount) means that Edwin is not alone. Please help Edwin to know that he isn’t alone. Thank you, Edwin’s Sister

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