Mar 13, 2019 at 04:47 pm

Phase 1B CNS Intensification almost done! Phase II next :-)

Update posted by Anna Dijamco

We should be finished with this cycle 2 weeks ago but Keira caught Pneumonia and was confined for 10 days. It is the longest that we stayed in the hospital, it was exhausting even if we were just there doing nothing. She was just sleeping most of the time, sometimes playing with her toys, video calling with her brother and grandparents, and eating-which I really had to force her to do. There were days where she really did not intake anything aside from milk. She really had no appetite, plus hospital food are really not appetizing. Her normal 4 bottles of milk a day reduced to not even one whole bottle. If i forcibly feed her, she will vomit, and it looked like she's forcing herself to vomit and it irked me so much, lecturing her how can she get well if she's not eating anything?! But no, she did not listen. But I didn't give up knowing that she really needs to intake even a small portion of food. I will feed her 2 spoons of solids and eventually she was able to finish half cup of rice. P.S. Don't get me wrong with the "irked so much" thing, every mother gets annoyed, annoyed with the situation and not really with our child and that doesn't stop us from loving our child unconditionally.

We were just supposed to have a blood test on the day that she was confined, because we need the result on the next day for her TIT chemo. But, she got fever in the evening and we were told by her doctor to rush her to ER. She needed blood transfusion because her hemoglobin dropped really low. She had x-ray that confirmed her Pneumonia. She had blood culture twice also, but no bacteria grew. She also had this test where the doctor swabbed her nostrils with a long cotton buds,(forgot what it is called). This test resulted that Keira has common cold virus.

It makes me so angry when the nurse or doctor drawing blood or inserting needle for dextrose couldn't get it for the first time and had to insert my child again on the other arm. But of course, i keep the anger to myself and realize that there are a lot of factors why they couldn't get it on first try. It is painful and difficult to watch, really. Keira had 4 needle insertions for dextrose, 2 inserts per hand. One, the original insert from ER. Two, the 1st insert got leaks, her blood and medicine are leaking out, they tried to save the insert and they did for a while but then it leaked again and then my daughter's hand got swollen hence the 3rd insert. The 3rd insert did not last, the line was not passable anymore and medicine couldn't get through, so 4th insert was due. She also had 2 venipuncture, one on each arm, for blood culture sample. and several finger prick for CBC test sample. Our angel has been going through a lot of pain, and I can't do anything :-(

And so we were discharged 10th day evening. If you could only see how she was so happy to go home, your heart will melt. hay.

We finally got to continue her chemo this week and one more shot later and we finish Phase 1B, yey!

We are really hoping that she will not get any more complication as we go along with her chemo. Please continue to pray for Keira. Thank you so much.

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