May 03, 2018 at 12:24 pm

Update Day 7

Update posted by Pat Domingo

Scottie's seizures have been more active since my last update. Doctors said his disease progressed despite the Sears serum. We have another option, which is Spinal Tap but the patient has to have stable vitals to undergo this procedure. And I'm afraid we don't have that stability.

Scottie can hardly lift himself to change positions while he sleeps, the nurses in the hospital melts his food and medicine to feed to him because he can hardly open his mouth. It's not looking as good as expected because of how the disease quickly progressed despite the serum. There's still hope though I must admit, it's starting to wear thin.

My main goal right now is to make Scottie as comfortable as possible so he knows he's not alone facing this disease.

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