Feb 25, 2018 at 04:14 am

Tito Froilan - Oculopharyngeal Muscular Dystrophy

Update posted by Aieen Marie Salonga

Tito Froilan - 51 yrs old have been showing symptoms of Oculophraryngeal Muscular Dystrophy - https://rarediseases.org/rare-diseases/oculopharyn....

He does have impaired articulation of speech, difficulty in chewing and swallowing, unable to close his eyelids and have shown signs of visual loss. He can no longer support himself to sit on his wheelchair, now being supported with seat belts.

Currently he is dependent to Systane Ultra, to ease soreness of his eyes due to inability to close his eyelids.

Systane Ultra - Php 410.00/10ml

He is also using adult diapers 24/7.

If funds were available we would like to have him checked by a specialist for us to be able to give him appropriate care.


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