Jul 17, 2018 at 04:37 am

UPDATE from Steven

Update posted by Sharon Lee

Thank you again for your help and encouragement and support. I appreciate every bit of it.

Things are going pretty well on my end. I had another PET Scan a few weeks ago and the result were as good as we could have hoped. The caveat is my micro spreading doesn't show up on PET Scans anyway, but the result shows I am not any worse. Which is great! So things are going in the right direction.

I went through a potential set back as two new spots appeared, on my left forearm near the elbow and on my left shoulder. They didn't look particularly suspicious but were inexplicable, and looked similar to the rare A-melanoma I had removed on that same arm. So we were concerned. My oncologist referred me back to a dermatologist who decided we needed to biopsy each spot. There was some delay in scheduling and eventually, over a few weeks, the two spots faded - especially in the few days leading up to the procedures. The day of the biopsies, we decided not to proceed. In any case, that was a big relief. I guess I hadn't allowed myself to realize how concerned I was about that, until I experienced the great sense of relief. But we'll see. I'll be re-examined again in that regard in a month.

I'm going to the hospital a couple days every other week now for blood work, oncologist consultation and immunotherapy treatment in the Chemotherapy Center. I'm in all day today. The staff is pleasant and, even though it is a large operation, many there greet me by name. I suppose being the non-Chinese Lee makes me stand out. The plan is for my ongoing treatment to continue through the end of the year.

I do feel very fatigued all the time and my joints hurt, and I now have "sever degeneration" in my hip joint and a lot of pain there - day and night. So that's not great. When I stand up, I'm like an old man with both jet lag and the flu struggling to get up off the sofa, so it takes me several seconds to get my balance and equilibrium and joints all lined up and ready before I start moving, limping forward. Other than that, I'm tolerating treatment pretty well and am continuously thankful I have not suffered serious side effects and that things are going in the right direction.

Sharon is handling a lot and is very supportive. Keira (6) and Sam (4) are full of love and hugely entertaining. We've been going to different beaches on weekends, which is great fun. And I feel better in the water.

I'm thankful for each one of you! Sending love and good wishes.

Steven

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