Ben The Warrior

Today we can't update you with progress. There are so many unanswered questions:
- why does he keep getting infections that no one can explain?
- why can't anyone tell us what his life will be like when he comes out the other side of this?
- how does the world keep turning without him singing in the car on the way to school each day?
- why did I spend so much time on my stupid phone worrying about work when I was with him?
- when are we going to hear his sweet little voice again?
- when is he going to ask us to go to Bounce, the Bike Park and Roll-egoli all in the same day again?
- when can we argue about him drinking coke instead of water?
- when will he give us the giant "huggles" he loved so much????

When is he coming back to us and what are we supposed to do to make the right decisions for him right now? Are we doing enough?

And most importantly - does he know how much we love him and how proud we are of him?

We miss you beautiful soul xxx