Jul 31, 2017 at 06:22 am

28 July 2017 - The Children's Hospital of Philadelphia - Application for Markus de Beer with Metabolic Disorder

Update posted by Marcell Bruynius

Markus will be scheduled for outpatient appointments, so he will be able to remain with you in your local hotel/residence.

Macy is actively working on the cost estimate. Once this is finalized, we will send to you for payment. Appointments will be scheduled once payment is confirmed.

Please note that sometimes there is a long wait for appointments as it is the summer, but we will do everything possible to expedite and organize the appointments; please do not purchase plane tickets until all appointments are secured.

Truthfully, this step can take about 2 weeks for financial clearance and scheduling all appointments, but often it is shorter.

We have a hospitality center at CHOP who can help you with finding a local hotel if you would like. Just let me know and I will put you in touch with them.

Would you kindly answer a few questions for me to ensure a smooth arrival?

Current weight:

Current Medications:

Any allergies to medications/food:

Is he alert and responsive? Smiles and recognizes you?

How many seizures does he have per day? How long do they last?

Does he have emergency seizure medication for prolonged seizures?

Does he use oxygen?

Who will be traveling with you to Philadelphia?

Please bring a car seat as this is a law in USA

Please do not hesitate to contact me with questions. We can arrange to speak on the phone if easier-we are happy to help.

Have a nice weekend,

Cathy

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