Weight: 3.9kg

It has been almost three weeks since the last update. Not much has changed other than Arlene's weight and it's steadily going in the right direction. She briefly struggled coping with the tube the first few weeks, and the discomfort led Arlene to rub her face quite frequently that the tube would have to be adjusted so it wouldn't interrupt her feeding. Now she seems to have completely adjusted to her new normal. Unfortunately, there's no progress with the strength/development of her throat muscles. The doctor recommends we continue the physiotherapy and wait.

Thank you to those who have donated and are following her updates. Your financial support has helped tremendously with hospital bills, tests, follow up doctor visits, and when the time comes it will also help her get the palatoplasty surgery she needs.

God bless and peace be upon you.