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Update posted by Mark Johnson On Jul 12

To update everyone who so kindly donated to Xavi's oxygen chamber, we are still using it as often as we can and we really think it has made a difference.

Xavi is now sitting unaided, trying to kneel, playing and interacting more and making lots more sounds, all really positive steps forward. We are also weaning off the epilepsy medication as we haven't had any sign of seizures for months.

We got an official cerebral palsy diagnosis last week and he has a lot of trouble with feeding so there is a lot of work still to do BUT he has already done so much more than we ever expected and we really believe the oxygen therapy has helped, thank you xxx

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