Sep 29, 2016 at 08:46 pm

In need of help...

Update posted by Jamie Delarwelle

Thank you for all the thoughts and prayers. As most of you know, Lillian was hospitalized from birth to almost 5 months old. She left the hospital with a g-tube, ostomy, many scars and medications as well as a long list of appointments to attend in preparation for her next surgery.

Now the time has come and her next open heart repair was scheduled for September 9th with the assumption that we would be home in about 2 weeks. Sadly that has not happened...

Lillian did very well with the repair and has been anxiously awaiting home so when news arose of a life threatening complication that can arise from heart surgery our hearts just dropped.

We've stayed in good faith and positivity until this hospital stay is now approaching a month.

We are having issues with needing to pay back the social security we received for our financial needs

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