Jun 01, 2015 at 11:19 pm
01/06/15
Update posted by Kailaidlaw161212 Kai Kai x- Today I was in the ward I had to get IV meds, an echo & chats with my doctors. It has been pointed out this morning that I have a Port (under my skin) in my chest which I get chemo, blood etc through but it is a single access point. When I go to transplant I need a Hickman line (outside my skin) which has two access points so before my BMT (bone marrow transplant) I have to get a new line. I have actually lost track of how many lines I have had but it is in double figures! Big day tomorrow we go to Yorkhill in Glasgow to see the BMT specialist! Yikes! It's Scary! Ward 2 has been my second home since I was 8 months old that's nearly 21 months! The staff are my friends and I will miss them all millions!! ?? However I am sure it won't be long before I make lots of new friends. ???? We still have not got accommodation but going to see a place tomorrow and waiting on a few others getting back but we are struggling so please everyone keep us in mind. The new Sick Kids hospital is moving to the Southern General in Glasgow and it is chaos! Ronald McDonald accommodation is running behind, Clic is running behind schedule. However we have been assured that the Haematology ward will move on time and I will get my transplant as planned so should get an official date. The specialists will also tell mummy & daddy the risk factors again and what we can expect. Regardless we will go ahead with the transplant at the brand new sick kids hospital as I deserve a chance not matter how small. ?? I am a child warrior!!
