Sad Long Post!

My results from yesterday show that my bone marrow is still the same as two weeks ago and not flooded with leukaemia. However I am in a dangerous position as my counts are still too low to get chemo but doctors started me back on steroids and some other meds to keep it at bay. So I will be grumpy again

Susan and my other consultants have urged us to reconsider stopping my treatment to give me a couple of months of creating good memories and no hospitals but my parents can't do that. If I was really poorly that would change things but my parents cant and wont give up on me. As two months or so is not enough time to have with me.

Glasgow has said they cant take me on as I am too high risk & there I would not survive. They are a fantastic hospital with amazing staff but the position I am in they can't help. Great Ormond Street in London said they are willing to try an experimental transplant but all my treatment would be there and after care so will have to move there for a while. This treatment has a very low chance of working but they can't offer anything else apart from stopping treatment and making memories. Mummy & daddy need to give me that chance no matter how slim as I am a fighter and no one thought I would make it to this age. London can't do the transplant until July which means it is a dangerous time between now and then but have to hope I stay in this good position. Mummy asked if we could do it in another country but advised it would take just as long to sort out if not longer which makes sense.

I am so sorry to tell you this over Facebook but wanted you guys to know. Mummy was so poorly last night with migraine and sickness she had to rest and my parents needed time to talk and cuddle. My family have been amazing as always and pulled together. My Daddy is being strong but hard for him as stress makes his MS worse and our doctors have said that NHS won't pay or help with a wheelchair flat near hospital and careers for Daddy. Mummy will be in hospital all the time with me so daddy needs help but they told doctors we will manage as being without Daddy is not an option. We are a family and have been through so much that we will be together what ever it takes.

We are going to have to start fundraising a lot more and contacting papers too which is difficult for us as a family as we do like to keep things personal and try and get by obviously except for this page. Friends & family have been amazing and some have fundraised and some are in the process of fundraising. CCLASP are emailing and contacting organisations already to get help & info for us. We are truly blessed with fantastic people in our life's.

I am their priority and we have to do everything to give me a shot at living as I am a wee boy who desperately wants to grow up and keep giving slavery kisses. We are devastated but we have to try x