On Saturday 3rd September, I spoke to Hanna (phone), and apparently those who seen what was recorded was so shocked, they wanted to come back for more. This time for eight hours.

It was a long day, but they caught a small seizure in The Drover's Return, where we go for our lunch, plus there's a flyer of mine on the board

Everything seemed to be going fine really (unfortunately for them). Once I'd put my daughter to bed, my carer went home...my fault entirely.

After that I can't remember a thing due to a different type of seizure.

In a way I'm glad it happened for them. As for me I don't remember a thing. But they was very kind and stayed until Dave got home....although I was ok by then. They have taken twenty-four photo's of me through my life as there will be a reconstruction, plus they also have some up to date photo's I've emailed.

They will be sending me a copy of all this when it's been edited, plus it will be very interesting to see, and hopefully help raise awareness of Hypothalamic Hamartoma's in Japan

www.leannebraintumourappeal.co.uk