The link below talks a little more about Pfeiffer Syndrome and what the surgical treatment a person has to go through. 

Sydney has had 5 surgeries in her young life so far. She will be having her sixth surgery coming up in about a month after her tissue expansion has reached its limit. So far it was going well but her one incision has opened and now has to wear a bandage until her surgery.

http://www.med.unc.edu/plastic/ptinfo/pediatric-plastic-and-craniofacial-surgery/pfeiffer-syndrome