Apr 27, 2013 at 12:17 am

Appointment with Dr. Behera

Update posted by Jgiampaolo
Hi everyone! Today we had a fetal echocardiogram (ultrasound of Alexandria's heart) with our Pediatric Cardiologist, Dr. Sarina Behera, from San Francisco. This appointment was basically a follow-up from our first echo with Dr. Behera, to check and see if we could get a better look at Allie's heart since she has grown. The heart develops around 8 weeks during pregnancy, so we weren't really expecting anything new in terms of development, but in visibility. Dr. Behera did notice a tiny, tiny amount of blood flow coming out of the pulmonary valve, but nothing significant. This doesn't really change our original diagnosis because she would have to have a conduit put in place regardless. (Due to basically having no blood flowing from it). We won't really know much more until she is born and has a cardiac catheterization performed. The cardiac catheterization will provide clear pictures for the surgical team to put together an exact plan, instead of relying on an ultrasound. Dr. Behera did notice a significant hole in between the upper chambers of the heart, in addition to the one already present in between the ventricles (lower part of heart). On another note, we are having a really hard time with my insurance, who does not want to send us to Stanford. Although, we do have two amazing doctors (Dr. Jimenez and Dr. Behera) working in our corner to still try and make this happen, as Stanford has the best surgeon in the world to correct Alexandria's condition. Please say an extra prayer for us, I know we will end up in the hands were supposed to. Thank you so much for taking time to stay updated with our family :) With love, Mallorie & Liko
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