Blessed Beyond AML’s Curse

Update posted by Marda Alina Dumaoang On Aug 18, 2017

2017 has not only added another year of strength and faith to Mommy Anne, but also a circle of new hearts she can call family.

The support Mom and Dad while in Maryland was overwhelming; the love they received warmed their hearts and firmed their will to fight AML. Their presence also assured us, who were in the Philippines then, that our family is truly and exceptionally blessed beyond AML's curse.

So this August 16, our Mom turned 52. We started the day with a visit to San Jose Capistrano to pray in one of its churches. In the collage, my brother is shown hugging our parents as they pray in thanksgiving for strength and perseverance.

Back at home, we had a simple birthday dinner of pansit, lasagna, and berry cake made with lots of love.

It is with great joy that I wish to thank you all for loving Mommy Anne as much as we do and for sending her your greetings and well-wishes on her special day.

May God continue to bless us all.


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Update posted by Liza Virata-Theimer On Aug 09, 2017

Please be informed that the Dumaoangs are now based in the Los Angeles, CA area, where they have relatives close by, while they seek a more effective treatment for Ann's AML. Correspondence and US donation checks may be mailed to: Artemio Dumaoang (c/o Leonora Dumaoang-Borja) at 953 Carson Lane, Pomona, CA 91766

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Update posted by Liza Virata-Theimer On Aug 07, 2017

Ann and Art Dumaoang renewed their marital vows this morning in a very heartfelt ecumenical ceremony at the NIH Chapel, surrounded by numerous friends and supporters from UPAADCMDVA (with affiliations to NIH) and the BIBAK Mid-Atlantic group. This was followed by a coffee-and-cake reception at the NIH 2nd floor cafeteria, where Art and Ann thanked everyone for their love and support. Ann was discharged from NIH at 1:30 pm. The Dumaoangs will be flying to Los Angeles, CA in 2 days to be with their relatives there, while they find a more effective treatment for Ann's AML. Stay tuned for their new contact information in L.A. once they have settled.

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Update posted by Liza Virata-Theimer On Jul 31, 2017

Dear ones, I am sorry to break the sad news that the treatment is not working for Ann. Her white blood cell count (wbc) has continued to increase and now in the 45. To reduce this, she must be put on hydroxyurea but that means she is out of the protocol. And she is now out of it. She will be treated here until it is safe for her to leave - for home or for any protocol in which she may be qualified. Presently, there is no such protocol at NIH. This is a real tough one but we pray for God's mercy and leading. Thank you very much for bearing with us in this journey. Thank you for your love. (from Art Dumaoang)

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Update posted by Liza Virata-Theimer On Jul 26, 2017

Hi everyone! Here awaiting blood tests and chemo (decitabine) administration. We will find out later if there is need for rbc and/or platelet transfusion.

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Update posted by Liza Virata-Theimer On Jul 09, 2017

Hello dear ones! Taken at 10:30 am today, before blood extraction. Platelet transfusion is on-going and we hope that this (or another one at the most) will be the last before the third treatment cycle begins on July 17. Warmest regards to you.

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Update posted by Liza Virata-Theimer On Jul 02, 2017

Hi everyone! Taken June 28, after Ann's platelet transfusion. Last Monday, June 26, she started her second cycle with Pembrolizumab - her sole drug for this cycle that ends July 16. We pray that she hurdle this cycle with no complications and that the entire treatment work effectively for her wellness and cure. Thank you for you love and support. Thank you for your love.

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Update posted by Liza Virata-Theimer On Jun 17, 2017

UPDATE ON ANN

Saturday, 17 June 2017
Day 13/21; Cycle 1/8
Ann has by far received her sole dose of Pembrolizumab and five of her 10 doses of decitabine for the first treatment cycle. She had fever last Tuesday that went off Thursday and on yesterday (Friday). The blood, stool, sputum and urine samples collected last Tuesday were all negative for “growth”. However, with her recurrent fever associated with cough, blood and sputum tests were additionally done, the results of which should be out in a few days. Meanwhile, she is placed on contact and respiratory isolation and therefore, visits are discouraged until further notice 
Nausea remains a challenge, though a good combination of anti-nausea medicines worked well for her yesterday.
We continue to ask for your prayers and support.
Again, thank you for your love!

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Update posted by Liza Virata-Theimer On Jun 17, 2017

Help Ann Dumaoang fight cancer!

Mary Ann "Ann" Dumaoang, a UPLB '87 alumna and Dept of Agrarian Reform (DAR) employee based in Ifugao Province, arrived in Bethesda, Maryland on May 23, 2017, accompanied by her husband, Artemio "Art", also a UPLB alumnus ('89) and a DAR employee, to participate in a National Institutes of Health (NIH) clinical trial for Acute Myeloid Leukemia (AML). Ann was diagnosed with AML last April 2016 and underwent 5 chemotherapy cycles, which involved 11 confinements of at least 15 days, from April to December 2016 at the National Kidney and Transplant Institute (NKTI) in Quezon City, Philippines. Her AML went into remission at the end of the treatment, however, by February 2017, it relapsed. Ann was again confined at NKTI from March 1 to May 12, where she received 2 cycles of a different chemotherapeutic drug, Decitabine, before being cleared by her doctors for travel to the NIH Clinical Center.

Ann was admitted as an NIH in-patient on May 25, 2017; after checking her current status, she qualified for the NIH clinical trial. The investigational protocol she will be on involves eight 21-day cycles of Pembrolizumab (a humanized monoclonal antibody) to be given on day 1 of each cycle, and Decitabine to be given on days 8-12, 15-19 of cycles 1, 3, 5 and 7. Succeeding treatments may include a bone marrow transplant. As of June 5, 2017, Ann has received her first dose of Pembrolizumab (day 1 of cycle 1).

In the meantime, the Dumaoangs are renting a room in a private home 2 miles from the NIH campus, since they will be in and out of the NIH Clinical Center at various times of the protocol. It is fortunate that Ann's immunotherapy will be covered by the NIH while she is a clinical trial participant, however, the Dumaoangs have already exhausted a lot of their own resources in the past year. To help cover their living expenses (room rent, transportation, food and supplies) during their stay, we are asking for your financial assistance in supporting them during this very difficult time in their lives. (FYI: Room rent is $150 a week or $600 a month, or $3,600 for 6 months).

(1) U.S. check donations (payable to Artemio L. Dumaoang) may be mailed to: xxxx (see new contact info, as of 8/8/2017)

(2) For donations by credit card or PayPal account, please use the Dumaoangs' GoGetFunding page set up by their daughter, Marda: https://gogetfunding.com/blessed-beyond-amls-curse/ (Please note that credit card processing fees will be applied).

(3) For donations in kind (e.g., food, care packages), please coordinate with Art Dumaoang for the best time to drop off the items at NIH Bldg 10 or at the house (6234 Valley Road, Bethesda, MD 20817). He may be reached at (909) 436-7811 or via email: [email protected]

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(4) For donors based in the Philippines, you may deposit your donations in the following bank account:

Land Bank of the Philippines Savings Account No. 0436-139-667 under Joi Mirdanne R. Dumaoang

For inquiries, please feel free to contact us at (63) 928-982-4935 - Marda Dumaoang, or (63)933-282-2508 - OJ Dumaoang.

Thank you!

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Please note that as of 8/6/2017 Ann has been discharged from NIH Bethesda. The Dumaoangs will be based in Los Angeles, CA starting on 8/8/2017. Stay tuned for their new contact information in L.A. once they have settled.

Liza Virata-Theimer

Update posted by Aug 08

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