My name is Bianca Scheepers. I am the mother of beautiful little boy Björn Scheepers. He was born on 20 April 2016 with Hydrocephalus which we picked up with the 28week 4D Scan. Due to this condition he had to get a VP shunt on 7 months where he had a ETV operation on 5 months but was unsuccessful.
He has a collapsed lung since birth where he spent 23 days in the NICU. Since birth he has had Pneumonia and Bronchitis numerous time and picks it up so fast due to low immune system and collapsed Lung. He is on chronic Asthma Inhalers every day to help keep open the Lungs.
Due to the hydrocephalus doctors said that his development is behind. Björn was thwn diagnosed in June 2018 with Joubert Syndrome. A rare disease that means low muscle tone, development delays,vision problems, breathing problems.
He started speech- and occupational therapy in 2017 and Physio in 2018. Björn has follow up appointments with his specialists every few months.
We then heard of the Family Hope Center in USA that has Amaizing results. We want to raise funds to attend their Parent Training Conference 2020.
It is the best tool to help Björn to get to where he must be.