Big fight for Sey, Stage 4 T-Cell Leukemia

Update posted by Zaldy Mendova On Apr 04, 2019

As of March 25, 2019 (Monday) - Sey took her weekly dose of L-ASPARAGINASE chemo drug, still in the outpatient unit. As usual, she had her blood tested a day before, done at the hospital near our home.

Perhaps Sey is being accustomed in being constantly pricked, she no longer cries nor show intense emotion before the needle insertion.

As of April 01, 2019 (Monday) - Again, she is back for the weekly dose of L-ASPA. This time her doctor increased the dosage of L-ASPARAGINASE, we don't know if this is based on the blood test result (done yesterday). We noticed that her hair is not as thin, so maybe the drug is working less effective. It gives you a mixed emotion, on a positive side she is looking girly again and less sick looking; but on a negative side, since hair is a fast growing cell and the drug should target the fast growing cells then it is not serving its intended purpose very well. Thankfully, there are no complications during this session.

As of April 02, 2019 (Tuesday) - She was back the following day for another set of chemo drugs,DOXORUBICIN and VINCRISTINE. These set of drugs is scheduled in her protocol every three weeks.

She vomited during the trip on her way to the hospital, but she was well onward even after the chemo.

We spent a total of 24k for all the expenses needed in the medication for this period, PWD and PHILHEALTH discounts already applied.

Lately, we are being emotionally challenged by hearing sad news from other patients who recently lost their battle. It gives you a different perspective in life, should we wait until everything is well before doing what we have been dreaming of doing or should we take the risk since the future is always uncertain. I heard a great speech that inspired me to take risk, he said do not wish that your problem would just go away, instead pray that you become stronger than the problem. Challenges will always come, this is life, it cannot be avoided, so the only option is to be better and become stronger. For the family, for the people we love, be better, be stronger and be there.


We are seeking for financial assistance; All help are highly appreciated, no amount is too small;

We hope you can also help us reach out to those who can by sharing our update.

BPI ACCOUNT: Zaldy L. Mendova / 3309056883

BDO ACCOUNT: Ira Ceres C. Mendova / 010080161812

THANK YOU SO MUCH!!!

For: Zisly Moriko C. Mendova/ 9yo. T-Cell Acute Lymphoblastic Leukemia Patient

Like us on Facebook: https://www.facebook.com/OneBigFightForSey

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Update posted by Zaldy Mendova On Mar 20, 2019

As of March 11, 2019 (Monday) - Sey was administered with her weekly dose of L-ASPARAGINASE. As usual, she had her blood tested a day before at the hospital near us. The staff who collects blood in the unit already knows her name because she has been tested weekly for many months now (I’ll confirm in our next visit if they are called phlebotomist, and how to pronounce it correctly). This chemo session went very smooth.

As of March 12, 2019 (Tuesday) - Sey was back for the DOXORUBICIN and VINCRISTINE. Last time, she went home while still wearing her heplock, but this time Sey preferred to go home without it (she was having a hard time playing with her electronic device). And maybe because the needle insertion was really quick and relatively tolerable so she no longer has issue in getting pricked again. Although there are three meds given to her, this session is faster than L-ASPA. And thankfully, everything went smooth again.

As of March 18, 2019 (Monday) - She is back again for the weekly dose of L-ASPA. Again, everything went well for this session.

Since the last update, we were testing her sugar level four times a day. We thought that we will not be needing the insulin shot since her sugar is always below 200. But last week, her sugar level started to spiked to more than 200 so she has been taking the insulin shot for several days now. It is hard to provide the recommended diet because she love carbo foods and hate vegetables.

We shelled out around 28k for all the medications in this update (PWD and Philhealth discounts applied).

Thank you for reading our update, we hope you and your entire family is well. Thank you for the prayers and for being here for our daughter; because of your support we grow stronger every day. We are doing our best to live normally and not let this challenge dictate our morale. And with this update, we hope that you are looking at your life a little lighter and brighter.

We are seeking for financial assistance, we hope you can help us reach out to those who can by sharing our update.

BPI ACCOUNT: Zaldy L. Mendova / 3309056883

BDO ACCOUNT: Ira Ceres C. Mendova / 010080161812

THANK YOU SO MUCH!!!

For: Zisly Moriko C. Mendova/ 9yo. T-Cell Acute Lymphoblastic Leukemia Patient

Like us on Facebook: https://www.facebook.com/OneBigFightForSey

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Update posted by Zaldy Mendova On Mar 06, 2019

Prior to her chemo sessions, a routine blood test is always needed to check if her body is ready to take the chemo meds. To reduce the stress, this is done a day before so she can still rest immediately while waiting for the result. The result is ready within an hour if rushed (additional cost) or 4 hours for the normal process.

As of February 24, 2019 (Sunday), aside from the usual CBC test, the doctor also wanted to check her blood sugar level thru a test called FBS. With fasting, the normal level should be around 100 but her test result is 200.

As of February 25, 2019 (Monday), she was back in the hospital for her weekly dose of L-ASPARAGINASE. Upon seeing the FBS result, her doctor told us that we cannot proceed with today’s medication; instead the Onco referred Sey to a Pedia endocrinologist and a Dietician. The earliest available schedule was on Friday so Sey just went home for the meantime.

As of March 02, 2019 (Friday), as scheduled we went to the Pedia Endo for the consultation. We were expecting that the doctor will just recommend a few home meds to lower the blood sugar and advice a few dos and don’ts. Since I was at work, only my wife accompanied Sey for the consultation. She was perplexed with what the doctor recommended. Although the rise in her blood glucose is caused by the L-ASPA, Sey must be treated as a diabetic patient.

Because Sey was also there as the doctor was discussing what needs to be done, she was already crying when she heard about the needle pricking. My workplace is near the hospital so my wife asked me to come over as she was still having a hard time absorbing this new challenge and she is unable to calm Sey.

The word Insulin is just a running joke when eating sugary food, but this time this word sends a tingling feeling to the nerve. The doctor said that Sey needs an insulin shot if her sugar level exceeds 200. Since we have no history of diabetes (both sides), we both know nothing except what we are seeing in the movies when a diabetic person needs a shot of insulin. And not a pretty picture if you will imagine your child being in that scenario.

We were referred to the diabetes unit to purchase the devices for blood checking and the insulin shot. Since we have no idea how to use the devices we underwent an orientation (separate fee). There, the nurse explained what is insulin and its purpose to our body; then a hands-on demo on how to use the devices.

We wasted a lot of strips on the second day because we don't know exactly how the mechanism works for this product. Pressing the lancing device will create a small punture to let a small drop of blood then directed to the white strip. The electronic result is displayed within seconds.

The Insulin Pen.

Back at home, maybe because the effect of the L-ASPA has already faded, her test results are always within normal limit. The test needs to be done three times a day, before meals and before bedtime. Sey understood that high sugar means insulin shot, so we didn’t have a hard time convincing her to lessen her intake of rice and other sugary food.

As of March 04, 2019 (Monday), since her sugar level is back to normal the doctor gave a go signal for the chemo session which is L-ASPA. Sey is in high spirit, we were making fun of how fast the needle insertion was done. Even when she was younger, I taught her to count to divert her mind of the pain during insertion (which adds pressure to the one doing the insertion).

The session went smooth and no vomiting even at home. Our total bill for this update is around 18k (after the discounts).

Thank you for taking the time to read this update, please enjoy your time with your family and let us all put a conscious effort in taking care of our health. And don't forget to share our update, maraming salamat po!

We are seeking for financial assistance; your help is highly appreciated.

BPI ACCOUNT: Zaldy L. Mendova / 3309056883

BDO ACCOUNT: Ira Ceres C. Mendova / 010080161812

THANK YOU SO MUCH!!!

For: Zisly Moriko C. Mendova/ 9yo. T-Cell Acute Lymphoblastic Leukemia Patient

Like us on Facebook: https://www.facebook.com/OneBigFightForSey

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Update posted by Zaldy Mendova On Feb 20, 2019

On her previous chemo session (Monday), the Onco referred Sey to a pediatric cardiologist to perform a 2D echocardiogram test. A clearance from the doctor is a must before the next chemo session which will be on next Monday.

On February 15, 2019 (Friday), Sey was back in the hospital to have her heart tested. Although the result will be released after two working days, the doctor already mentioned that he did not find any problem with Sey's heart (Salamat po!).

As of February 17, 2019 (Sunday), as a part of the routine, she had her blood tested again at Binangonan Lakeview Hospital. This time an additional test which is called Bilirubin was added to help check the health of her liver.

As of February 18, 2019 (Monday), Sey was again administered with her weekly dose of L-ASPARAGINASE - given at the outpatient unit. The entire session went smooth, again only one try for the needle insertion. But she vomited during our trip going home and twice at home. We thought that her antacid (maalox) was still enough (bottle looks tricky) so we delayed buying a new one, this was a mistake on our end.

As of February 19, 2019 (Tuesday), Sey is back for another set of chemo meds (VINCRISTINE, DOXORUBICIN). These were also given thru the outpatient unit; in her past sessions these meds were given as inpatient along with TIT. Although a little tiring for Sey and all of us, we chose to just comeback because our bill can easily balloon if we choose to be admitted.

Hep Lock - the tube with a catheter

To avoid a repeat insertion of the needle she went home from the previous session while still wearing the hep lock. The nurses were happy that the hep lock remained intact hence no need for another insertion.

One of her home medicine which is MERCAPTOPURINE is only sold at big hospitals. The prescription required 14 pcs but the hospital can only provide us 7 pcs. According to the pharma, they are running out of stock so they are trying to manage what's remaining. They are not sure when will be the next delivery from the sole supplier so we were advised to try at St. Lukes hospital. For now, the 7 pcs can still run for 7 days and we hope that there will be a stock available by the time it runs out.

We have spent more than 22k for all the test and medications done during this update (discounts applied).

Thank you for reading our update. Again, thank you in advance for sharing this update and for inviting your friends to like the Facebook page; we really appreciate every little help that we are getting.

We are seeking for financial assistance, no amount is too small.

BPI ACCOUNT: Zaldy L. Mendova / 3309056883

BDO ACCOUNT: Ira Ceres C. Mendova / 010080161812

THANK YOU SO MUCH!!!

For: Zisly Moriko C. Mendova/ 9yo. T-Cell Acute Lymphoblastic Leukemia Patient

Like us on Facebook: https://www.facebook.com/OneBigFightForSey

Add a Comment

Update posted by Zaldy Mendova On Feb 13, 2019

As of February 11, 2019. Sey was again administered with the weekly L-ASPARAGINASE in the outpatient unit. Her blood was tested earlier in the morning. Normally we should already have a result a day before the chemo but we didn’t get a request from the doctor during the last session, so the test was done on the same day. Again, both the needle insertion for the blood test and the chemo only took one try :-). The chemo session has started and finished late again, this time because we were waiting for the blood test result.

Sey was probably tired of waiting for the result so she was asleep most of the chemo session

The session was completed smoothly, her doctor requires a2D-echo to check the health of her heart so she will be back again in the hospital within this week.

The total hospital bill for this session is more than 23k, after Philhealth and PWD we paid more than 12k.

Our page shares have greatly increased, thank you for the love! We hope that you will keep on supporting our goal which is to reach more people who can extend a helping hand.

We are seeking for assistance.

BPI ACCOUNT: Zaldy L. Mendova / 3309056883

BDO ACCOUNT: Ira Ceres C. Mendova / 010080161812

THANK YOU SO MUCH!!!

For: Zisly Moriko C. Mendova/ 9yo. T-Cell Acute Lymphoblastic Leukemia Patient

Like us on Facebook: https://www.facebook.com/OneBigFightForSey
Add a Comment

Update posted by Zaldy Mendova On Feb 06, 2019

As of February 04, 2019. As scheduled, Sey was administered with L-ASPARAGINASE in the outpatient unit of C center. Thankfully the needle insertion only took one shot so no crying for this session. She also had her routine blood testing at Binangonan Lakeview Hospital; again the needle insertion went smooth so no tears also during the blood testing.

The chemo started a little late because the Doctor was in the middle of another operation. Though all chemo activities are done by nurses alone, we only need the order sheet from the doctor and everything else is just coordinated. The doctor always need to check the blood test result before issuing an order, and the result can also be relayed by nurses through phone.

The chemo unit went overtime for us but the nurses are super nice, you won't feel that you are giving them a burden; normal operating hours are 8am-6pm. We finished late (8pm) but everything went smooth, we even got an up-close view of the fireworks for the Chinese New Year.

The total hospital bill for this session is more than 20k, after Philhealth and PWD we paid more than 9k.

Thank you for reading our update, please don’t get tired in sharing our page, so we can reach more people.

This is our reality, we are knocking on strangers doors and we cannot allow our pride to get in the way. No amount is too small; any amount will help us go a long way because this is a long battle. And with blessings from heaven together with your help we are one step closer in saving our dear Sey.

For Direct Donations,

BPI ACCOUNT

Zaldy L. Mendova

3309056883

BDO ACCOUNT

Ira Ceres C. Mendova

010080161812

THANK YOU SO MUCH!

For:

Zisly Moriko C. Mendova/ 9yo

T-Cell Acute Lymphoblastic Leukemia Patient

Add a Comment

Update posted by Zaldy Mendova On Jan 30, 2019

As of January 29, 2019. For this chemo session, she will undergo another TIT procedure and will also be given different chemo meds such as L-Asparaginase, Doxorubicin and Vincristine.

She was back in the hospital last Sunday January 27, 2019 for the scheduled admission; she needed to be hydrated before her chemo meds. The needle insertion was done by a new resident pedia, deep inside I was worried for Sey because doctors who does not know her tend to be complacent. He looked prepared because for the first time someone brought a vein finder light tool (I don't know what they call it). Only to my disappointment, he still did not get it in his first try. And opposite to her reaction to the insertion last session, this time Sey was crying really loud and I really felt her pain. I know that they are doing their best because nobody wants a second pricking, but I have to be honest, I am always seconds away from being confrontational when this things happen. Sey would stare at me and give me that look, begging to be rescued and there's very little thing her father can do to ease the pain. Good thing my wife is calmer and would always balance the situation.

As of Monday, the 3 chemo meds were administered and thankfully no vomiting. The drugs made her sensitive to the smell of food and would feel like throwing up but they gave her meds to cope with the nausea and vomiting such as Ondansetron and Maalox.

The TIT procedure was done on Tuesday January 29, 2019, sample fluid was also taken for histopath and cytospin to look for cerebrospinal cyst content. We pray that the same as last time she remains negative for big C invasion.

Onco said we can go home on the same day if she is okay after the procedure, so we pushed for the discharge. Onco must have been too preoccupied that he failed to forward his professional fee to billing department, given after several follow up from the nurses.

The total hospital bill is almost 71k, after Philhealth and PWD we paid around 51k (arayyy and to think that Onco PF was still not included). We will be back again on Monday for the weekly L-ASPA.

Thank you for taking the time to read our update, we hope you can help us reach someone who is capable of extending help for Sey. Kindly share this post and the Facebook page: One Big Fight for Sey

Thank you for the prayers and the financial support.

For Direct Donations:

BPI ACCOUNT

Zaldy L. Mendova

3309056883

BDO ACCOUNT

Ira Ceres C. Mendova

010080161812

THANK YOU SO MUCH!

For:

Zisly Moriko C. Mendova/ 9yo

T-Cell Acute Lymphoblastic Leukemia Patient

Add a Comment

Update posted by Zaldy Mendova On Jan 22, 2019

In the protocol, Sey must be administered with L-ASPARAGINASE weekly for the entire intensification phase (6-9months). This is done though the outpatient unit and takes at least 4 hours to complete. Last week (Jan 18) would have been her 4th L-ASPA but she had a mild fever so she was sent home with prescription to take antibiotics; chemo was rescheduled on Monday (Jan 21). She already had her blood tested at Binangonan Lakeview Hospital before Jan 18, and as usual the numbers are outside the limits. But what's unusual is Sey's reaction, for the first time ever she did not shed a single tear. Maybe she's getting stronger or maybe getting numb.

Monday January 21, she was back in the hospital for the L-ASPA. Two unusual things happened; One, the needle insertion was a success in the first try (wow). Two, for the second time Sey did not cry during the insertion (wow again). This session was completed with no hassle. The total hospital bill is more than 20k, after Philhealth and PWD we paid more than 9k.

By now, based on the pattern of our expenses we can estimate the needed amount to fund the entire medication. It is still overwhelming, especially that we know all capable family and friends have already helped us one way or another. We know for a fact that there is a limit to what everyone can share. We know that you also have your needs and they are no less urgent than ours. But you can still help us by simply sharing the page to your friends, by inviting them to like the FB page. We know that there are more people out there with a golden heart just like you, and we just need a way to reach out to them. We kindly ask one more favor from you; please share the FB page with your friends. Help us put the page out there where more people can see it, for Sey.

Thank you and may your good deeds come back to you in many many folds.

Visit her facebook page:

One Big Fight for Sey

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Update posted by Zaldy Mendova On Jan 11, 2019

As of January 11 2019. The drug therapies for this week are TIT, Vincristine, Doxorubicin and L-Asparaginase.

She is required to have her blood tested before any procedure. She took the blood testing in Binangonan Lakeview Hospital last Sunday (15 minutes away from our house), this has been part of our routine. The numbers in the blood test result are always off the scale but the doctor’s reaction would always be ‘maganda result natin...’, so we stopped trying to interpret the result to keep us from worrying.

She was admitted last Monday January 07 in preparation for her TIT procedure on Tuesday. They also gave her Vincristine and Doxo, not sure which drug has caused her to vomit. She was taking a pee when it triggered; it made quite a mess in the rest room because the emesis basin has overflowed, she ate and drink a lot before it happened. Onco gave her something to help her fall asleep immediately via IV, she was sleeping like a baby in just a couple of minutes. She woke up the following morning and she was feeling okay.

We were discharged on Wednesday afternoon, but the entire day was just spent on waiting for our bill. The total hospital bill is around 44k, after Philhealth and PWD we paid a little more than 33k.

Today is Friday, January 11 2019. She was given L-ASPA in the outpatient unit, this time it took 3 tries to insert the needle properly. She cried a lot, someone from the other room must have heard her and gave her a chocolate. The relatives accompanying their patients in this unit especially the elderly women have a very soft spot for young patients. Some would really approach us and with teary eyes would offer words of encouragement and prayers. But we cannot be emotional when we are around Sey so we just say our thanks and move on. The total hospital bill is more than 20k, after Philhealth and PWD we paid almost 10k.

After L-ASPA while waiting for lolo to drive us home.

We kindly seek for you continuous financial assistance as we still have a long way to go.

For Direct Donations:

BPI ACCOUNT

Zaldy L. Mendova

3309056883

BDO ACCOUNT

Ira Ceres C. Mendova

010080161812

THANK YOU SO MUCH!

For:

Zisly Moriko C. Mendova/ 9yo

T-Cell Acute Lymphoblastic Leukemia Patient

Add a Comment

Update posted by Zaldy Mendova On Jan 04, 2019

As of January 04, 2019 (FRIDAY), same as last week her L-ASPARAGINASE chemo session for today is done as outpatient (2nd time).

There's no need for blood test so no extra pain and no extra cost for us. Our total hospital bill is around 20k, after the Philhealth and PWD we paid almost 10k.

All went well for this session except for the notorious 2nd insertion of needle because of her thin vein. I said notorious because this has been a problem since the start of her medication. It came to a point when we had to orient whoever will perform the insertion because she was already showing signs of stress. Until now she would always cry before the insertion and we have learned to just let her express her pain. We used to tell her 'hindi naman masakit, kaya mo yan, mabilis lang yan' because we thought we were helping her reduce the pain that she is about to feel. We have learned that if we cannot do anything to reduce the pain, we need to be strong but not insensitive.

Sey is doing great so far, no fever and no discomfort. We are hoping that this is a sign that the medication is working well and we are praying that she will stay this way. We know that all of you are with us in every step of this journey, and we are very thankful.

We kindly asked for you continuous financial assistance as we still have a long way to go.

For Direct Donations:

BPI ACCOUNT

Zaldy L. Mendova

3309056883

BDO ACCOUNT

Ira Ceres C. Mendova

010080161812

THANK YOU SO MUCH!

For:

Zisly Moriko C. Mendova/ 9yo

T-Cell Acute Lymphoblastic Leukemia Patient

Add a Comment

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