Back on her feet 1

My previously very active 15 year old daughter Antonia has been in hospital for the past 5 Months. Gravity has literally knocked her sideways and she has not been able to stand up. She was finally diagnosed with a condition Postural Orthostatic Tachycardia Syndrome as a result of EDS 111 hyper mobility. Thanks to world experts she has been put on the right meds and is working so hard to try to get herself up. Sadly there is no paediatric specialist on the nhs and so our hope for rehabilitation and to literally get her on her feet is to take up an offer of a two week intensive programme privately with the experts. They are hopeful that they can make a huge difference. She has been so brave and amazing - needing huge determination through pain. If you can help to help her get back some of her previous life through contributing and out of hospital I would be so grateful. We have no alternative.