Baby Luna’s Battle with CDH

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Since we had the 20-week congenital anomaly scan, we've been storming the heavens for our little girl. I dreaded doctors appointment ever since. Every routine check-up has just been bad news.

She was diagnosed with a very rare birth defect called Congenital Diaphragmatic Hernia (CDH). It's a hole in her diaphragm that allowed abdominal contents to move up to her chest cavity - thus, not allowing her lungs to fully develop. I'm carrying her now in my belly, not knowing what lies ahead once she makes her debut into the world. She may or may not be able to breath on her own after birth and there's a chance that we won't be able to take her home.

We went to a high-risk pregnancy doctor and she told us that best case scenario is she will be able to stabilize her breathing and go under operation which will cost a huge sum of money. Worst case is she'll die from lack of oxygen. Doctors say that babies with CDH have only 50% chance of survival but we're willing to fight with her until the end.

We expect her to come into this world in October 2019. I might have her 2 weeks before or two weeks after. We are trying to prepare for the battle ahead emotionally, physically, and financially. Thank you for taking the time to read and for your continued prayers and support. It means the world to our family.

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  • Mary Grace Rivera
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