My grandson Luke was born on February 1, 2015 at 9 weeks early. He has been in the NICU since he was born.We really lucked out because he weighed 4lb 13oz. He still has to be on a respirator to aid in his breathing and monitored closely. He was a good size for being that early. But he has a condition that has had the Doctors baffled.
He has Hyperinsulinemia which is his pancreas is producing way to much insulin. Luke has to be poked ever 6 hours to test his sugar levels, usually this is done on his foot. He has been at St. Marys Hospital in Madison Wisconsin since he was born. Now he has to be transferred to the Children's Hospital of Philadelphia. This perticular Hospital specializes in his condition and will do surgery to remove part or most of his pancreas. He has a mutation in his genes that effect the pancreas. This gene mutation is very very rare and the Doctors have not seen anything like this before. Luke is my daughters first child and she has been very brave with all of this. She wasn't even able to hold Luke until like a week or week and a half later. He will probably have some kind of issue with his blood sugar for his whole life but that we can deal with.
As you can imaging this has been very hard on Luke's parents and all of Us. He is such a little baby and to have to be poked and have test after test is very difficult. it's hard to watch a little baby go through all of this and still not have answers.
I have never asked for anything before so this is new to me. I am asking for donations to help cover the medical costs, the cost of his blood sugar supplies and to help with getting us out to Philadelphia and expenses while we are there. Anything at all, even a dollar will be greatly greatly appreciated. I thank you for reading my grandsons story and for your donations.