6Ventriculomegaly / Congenital hydrocephalus / Imperforate anus
I haven't been so open about my baby's current situation. I didn't have the courage to let everyone know what is happening to her right now. I was scared of judgement. Reactions. Insults. But I am desperate to fight for her life. This may bore you but this is the only option i have to save my baby's life.
Baby cassidy blair is going through a lot right now. Most of you know that I lost my first baby due to miscarriage so the 2nd time I had the chance to carry this little angel, I was really cautious about everything.
I went through hell before my pregnancy was confirmed. I had 3 ultrasounds all saying that I am having an ectopic pregnancy. I held on to my faith and prayed for days & nights. I can't afford to lose another baby again. The ob-gyne gave me an ultimatum. 3 more days then she is going to confirm the diagnosis and prepare me for surgery.
I was torn. Frustrated. Helpless. But still I knew that somehow, there will be miracle.
Come third day ,
I couldn't tell you how much I cried seeing my 5 weeks baby on ultrasound. Imagine being in my situation , so the next thing you'll surely do is take vitamins, take care of yourself & avoid all the don'ts in pregnancy.
On my 5th month check up , I was excited to know what the gender of the baby was. I've always wanted a baby girl. I got nervous when the sonologist was carefully scanning the "head-part" of the baby and asked me " Nagkasakit ka ba ?" ( Have you ever been sick? ) I said no.
Then asked me if I was taking folic acid, I said yes. The moment my menstruation was delayed, I started taking folic acid.
She said "May problema kasi ang baby, pero Baby girl nga pala sya "
( There seems to be a problem with the baby , and btw you're having a baby girl)
I was happy and confused at the same time. The Ob-gyne explained to me that my baby has hydrocephalus.
I went home in tears but I am in denial. They can't be right. They can't be.
The ff. Day, I went to a different clinic to get a 2nd opinion where the Dr. told me that the scan says everythng is fine. And it maybe just a misdiagnosis. So I was relieved.
On my 7th month check up I had another ultrasound ( Fetal anomaly scan ) just to make sure everything is fine. The scan confirmed that my baby has ventriculomegaly due to hydrocephalus. I broke down in tears. I have to wait for her to be born to get her treated.
I gave birth to her last May 24 this year via C-Section. Same day I found out that she has imperforate anus ( She doesn't have a rectum ) and had her first surgery on her 3rd day for colostomy.
Poor blair She went straight to nicu and I didn't have the chance to feed her, touch her, kiss her nor hug her. I saw her for few seconds and that was the most painful first meet-up i've ever experienced.
The pedia on that hospital where we were confined at that moment told us that we should just take blair home, There is nothing they can do to save her, that even when they push through with the brain surgery she will never ever function. The dr even blamed me and said "I don't know what pill you took when you were pregnant for your baby to be like that, but I want you to decide whether you still want her to suffer here or just take her home and spend time with her atleast".
If it weren't for my painful and fresh stitches from c-section I gave that doctor a high five on her face.
Seems like I know more about hydrocephalus than her. (she is a pedia, not a neurologist nor a neurosurgeon btw)
To cut it short, I was convinced by few people who cared to get a second opinion. That Blair deserves to live. So I took her to one of the biggest hospitals in town. I didn't know where to get the funds, how we will end up there, or what will happen next . All I know is that if there is a slightest chance of survival, I will hold onto it. As I touched & carried her for the first time, I realized the doctors were lying all along. They said thay blair does not respond to anything anymore and her brain is too small , only enough for her to breathe.
They were lying. She is crying when in pain , when hungry, when irritated. She smiles, tickles, moves all the time & do all the normal baby does. I have to fight for her. I have to.
We waited for 3 days in that hospital only to be told " No surgeons here in Zamboanga City wants to do your baby's surgery due to her colostomy, but I can refer you to Manila doctor's hospital".
As a mother of a baby who is fighting for her life, i will do everything that I can to save her.
With the help of few friends, we were able to fly to manila to get her treated. Her surgery is scheduled on the first or 3rd week of july.
She needs colostomy bags, Infant formula, diapers, and taking vitamins as well.
I am knocking on your hearts for help ,
ANY AMOUNT WILL BE HIGHLY APPRECIATED .
YOU CAN ALSO SEND HELP VIA any Money remittances to me,
RIDZMA A. ABDULLA
SAN MATEO, RIZAL
If you want to personally meet baby blair, you can send me a pm on my facebook account
Update: She had surgery for her brain last July 17 , 2019. It didn't work . She is taking medications to slow the fluid production in her brain. We are preparing for 3 surgeries soon. 2 surgeries for her imperforata anus and one for shunt. Hopefully those are enough..
THANKYOU SO MUCH & GODBLESS ...