Baby Ash Medication

Update posted by Trisha Tan On Mar 15, 2020

Not much to report. Not a lot of new changes. Asher continues to spike fevers as the Tylenol and Ibuprofen wear off, but once re-medicated, his fever is kept at bay for a little while longer. He has been asleep for much of the day.

His heart rate has finally trended back down into the 120’s - 130’s. 🙌

Asher’s color is also much better! He is pink again since receiving his blood transfusion. 🙌 His healthcare team likes to joke how much Asher “loves his blood!” The higher his levels, the happier his body is and pink is a much better color on him than blue/gray!

Look at his pose! Asher is showing us his muscles and reminding us how strong he is with God by his side!

Praying tomorrow is a better day for Asher!

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Update posted by Trisha Tan On Mar 12, 2020

Asher has had a rough, rough day. Sweet boy. The doctors are thinking that his fever is coming from “tracheitis” which is an infection of the trachea (breathing tube or windpipe) that is caused by bacteria. Asher has been started on Vancomycin and Cefepime for treatment.

His nebulizer treatments are starting to help break up the junk we are suctioning out and he is having less cyanotic spells due to the mucous plugging his tracheostomy. Now, if the nurse does anything(so small as putting a blanket over him or changing his diaper) he gets MAD and holds his breath setting off all the bells and whistles.

They fix one thing and he finds something else to bring the party back to his room.

I’m not sure if ENT will change out his trach tomorrow or not with the presuming tracheitis or if they will have to wait until it’s treated. Now, we wait. I’ll update more when I know stuff.

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Update posted by Trisha Tan On Mar 10, 2020

Had a visit from the sweet lady! Just love her so! I wish she knew how influential she has been to me in MY journey with God! Thank you for the gift basket and most importantly, your visit and prayer! God does have big things in store for Asher!

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