Baby Annachelle's Eyesight
We were given a beautiful gift on the 26th August 2020, A little girl which we named Annachelle. This little bundle of joy was born during a really troubling part of our lives, nonetheless, we are her proud parents. During the course of Late January 2021, we noticed that Annachelle was not able to focus correctly on people or items. We started with the usual beg and borrow to have her seen by DR Botha from Optimized. On our consultation, the doctor raised the following concerns. Potential PHPV. Potential growth behind the right eye. The Doctors prognosis was to have the baby firstly undergo an MRI for the growth and then proceed to diagnose and look at ways forward for the baby. The doctor provided a request for an MRI. Unfortunately, we are not in the financial position to do the MRI in a private hospital.
Hence, we proceeded to the Johannesburg General Hospital. After several days of sitting and waiting to get into the MRI room, we produced the Doctors recommendations. This is where it gets complicated.
After waiting and sitting patiently we have turned away from the MRI department due to the request not being from the Johannesburg General Ophthalmologists. Of course, we immediately started the process at the Johannesburg General Hospital to see the Ophthalmologist. The queuing
process was started on the 18th of March 2021. We were able to see the doctors later that afternoon and advised they are unable to recommend an MRI but would suggest a CAT scan.
We were in the queue the whole day for the baby to have the CAT scan. Annachelle, had her last meal at 4 am that morning and was not allowed to eat or drink until the CAT scan had been completed. Later on that afternoon, we were advised that the scan could not be done and that we need to come back and, another date was given. We had to adhere to Covid regulations and, had to be tested again on Sunday Morning the 21st March 2020. Once the test results came back negative we were given the date of Tuesday 23rd March for the Doctor to examine baby in the theatre. Again, on Tuesday the 23rd March, Annachelle was not allowed anything to eat or drink until she was examined in theatre. As we all know not feeding a 7-month-old baby for the whole day is challenging as their natural instinct is to cry or become difficult because they are hungry or thirsty and, they do not understand.
The procedure was done in theatre and we had to return for the diagnosis on Wednesday 24th March. In all this time family and friends had been assisting with petrol money to drive to and from the hospital.
Our financial situation is tough and we barely survive. We returned to the Johannesburg General on the 24th March 2020 and the prognosis/diagnosis was that baby was blind and had only a portion to no retina. They did no
scans as they did not find anything life-threatening and would not proceed with the CAT scan or MRI that was recommended by the eye Specialist Dr Botha.
The best explanation they were able to give is there is nothing further that can be done and that Annachelle would lose any form of sight due to PHPV. All funds raised will be utilised in treatment and medications etc. Our goal is to get the baby to the eye institute of South Africa and if they are unable to assist we would like Baby and Mom to go to a world-class institute in America.