Hi Everyone. I am Amanda Drake-Worth and would love to support my niece Sarah and her partner Richard in their campaign to raise funds for their beautiful baby Son Aiden. Aiden was born in June 2012 and he is now 15 months old. He is a very happy and contended baby however he has an undiagnosed condition. He loves lying on his back and looking around however he is not able to support his head yet but he's trying really hard to do so. This has an effect on the rest of his posture as he is unable to sit up at all or hold onto objects for long periods including any teething rings.
It is known he has "devlopmental delay" and a genetic condition that has not yet been identified. The Myelin on the nerves in his brain have not fully developed so this is an area of concern for the neurologist and geneticist alike. He also has low muscle tone.
Unfortunately, because he cannot fully support his body, he struggles to eat and drink sufficiently without a severe risk of choking. He spends so much effort trying to hold himself upright in a high chair which does not fully support him as he does not have the ability to eat and often chokes in the process.
We are looking to raise money for his ongoing specialist equipment he will need so as to avoid the stress and accompanying anxiety that Sarah and Richard are naturally experiencing.
We appreciate so much any donations that we receive.
Amanda Drake-Worth on behalf of Sarah and Richard