Thank you for taking the time to read and consider donating to this campaign.
What my family needs right now is a miracle. God willing this funding campaign will create such power...
I am a desperate mother of two amazing autistic sons Austin and Aiden. My health is rapidly deteriorating, I'm hanging by a thread and not sure how much longer I can last. Hopefully I'll be strong enough to hold on until my dream/wish comes true as I envision relaxing while spending quality time with my angels sent from heaven in a safe happy healthy secure home. Rather then be anxious and run with fear, like I have been for years.
My oldest son (non-verbal, autistic) is diagnosed with Lennox Gastaut syndrome a severe form of intractable epilepsy. Austin has suffered many injuries including going through sheet rock (see photos), falling into a picture window, broke his nose, collar bone twice and arm twice all from seizures. On May 7th 2017 Austin returned home after a week long stay at Upstate Golisano Hospital. This was the third time in two years he was admitted after being rushed by ambulance in status epilepticus.
Austin has seizures daily despite being on 3 AED's in addition to medical cannabis oil. Someone needs to be in arms reach of him across all environments because his drop seizures have no warning. This is physically and mentally draining. The boys grandmother (my mommy) has sacrificed her own career and life to help me ensure the boys are safe, happy and healthy thus far. We are both anxious all the time that one of the boys will get hurt, take off outside, get hit by a car, get lost, drown or be killed. NOBODY should have to live this way.
One day when Austin gave me the a sad expression while signing the word "disappointed" I asked him if he understood why Aiden was able to do what he was being asked to wait for an adult to do, he pointed to NO. I continued on by asking him if he knew what it means when he hears people say "Austin had a seizure" again he pointed to NO.
In my quest to help him understand why he cant run through the house on his own,go in and out the back door or even walk up the stairs to his room alone I began to capture some video clips of him seizing. The video clip attached to this campaign is one of them. It is devastating to watch but must be watched in order to fully understand the inspiration behind this funding page and my AUTISM & EPILEPSY SAFE HOME. Please help us to build OUR dream come true safe home, so that my children can live and play with more independence and freedom.
I have come to terms with the idea that even with extra supports I wont be able to do this much longer without home safety modifications and an intensive therapy program for myself. I have put my healthcare needs on the back burner and instead ran from what I do not want to face. Austin and Aiden deserve a better quality of life than what I have been able to provide for them. The guilt I feel daily is unbearable.
At this time the only income we have is the boys monthly SSI. I applied for SSDI for myself in August 2015, I am diagnosed with severe Generalized Anxiety Disorder, Depression, Fibromyalgia, CFS (soon to be Narcolepsy) and ADD. In December 2015 I received a denial letter from both SSDI and SSI which was shocking to me as I was very honest with all portions of the application process. Currently I am still waiting for a fair hearing. It has been said that " This Too Shall Pass" hopefully sooner than later.
I have shared minimal amounts of our story because time is running out and this is an urgent situation. This funding campaign will not go live on the gogetfunding site until the minimum $100 in donations is received. Therefore I ask you all to spread this like wild fire share it via email, fb, twitter, tumbler and any other way you can. Thanks you from the bottom of my heart. God Bless <3
This funding page allows for monetary donations. However other types are welcome and appreciated " more than words can say". The link below covers most environmental modification for making a home safe, happy, healthy more accessible and independent.
:http://parenttoparentnys.org/images/uploads/pdfs/M... ( Guide for Making Homes That Work)
Again I thank you for taking the time to read my funding page and for considering blessing my family.with
Amanda, Austin & Aiden
" TEAM AAA "