My name is Filipe and I'm 20 years old and I have a rare disease called Moebius Syndrome.
What's the Moebius Syndrome?
The moebius syndrome is a rare neurological condition that primarily affects the muscles that control facial expression and eye movement.Weakness or paralysis of the facial muscles is one of the most common features of Moebius syndrome. Affected individuals lack facial expressions; I cannot smile, frown, or raise my eyebrows. The muscle weakness also causes problems with feeding that become apparent in early infancy.
A little bit of my history.
I was born in Brazil in 2000 and I was diagnosed with the Moebius Syndrome, after that, my parents started to search for treatments for my problem, but unfortunately, we never had the necessary information about the syndrome, we hadn't any ideia of what to do, we went to a lot of doctors and sometimes they didn't know what I have. But thanks the internet, years later I could find out everything about my disease and I saw a light in the end of the tunnel.
I'm not going to lie, being myself is a big challenge, I have to face a lot prejudice every single day. I never had a girlfriend because the girls are frequently walking away from me, I never had a job because they judge me because of my face.
I have big thoughts, I have plans to move to Canada, being a journalist or do something related to communication. I don't want to live this life in vain. I wish I could be happy because there's a lot of time for me yet.
Objective of this crowdfunding campaign
The objective of this campaign is raise money for my assistance. I want this money to make all possible surgery like:
- Bilateral Selective Neurolysis
- Temporalis Transfer
- Eyelid Reconstruction (I can't close and blink my eyes)
- Strabismus Surgery
- Plastic Surgery
- Orthognathic Surgery (I can't close my mouth)
Besides that, there's other treatments that I also need to do as well like:
- Speech Therapy
- Dental Treatments
- Psychological Treatments
I will do all these treatments in the United States, and I'll stay there for months, so this money is also going to support me with:
- Emergencial Stuffs
I'm 20 years old, and however I have lived a lot but I still have a lot of years ahead, and I'm available to fight against this disease.
I also know that I'm asking a lot of money and there's a lot of bad people applying scams. But I promise that I'll show you every step of my treatment and professional achievements, to everyone see that a small donation made a lot of difference in my life.
It's a lit bit sad live in Brazil and knowing that I can work my whole life and I'll never get the money that I need. That's why crowdfunding campaign was the only option that I found.
If you can't donate for this campaign, you can donate a share in your social medias, that's very important too.
Thank you to everyone who read this, thank you to everyone who will donate or already donated, thank you to everyone who shared or will share this to your friends and family. Thank you.
God bless you all.
- Filipe :)