Anti-NMDA Receptor Encephalitis Treatment for a Grade 8 Student

Update posted by Francis Lelis On Dec 07, 2019

2 weeks after Chezka’s IVIG treatment, she’s showing slight improvement in changes to her clockwork behavior. Her agitation’s intensity lower down, she’s now giving eye contact, sometimes she responds to “high five & fist bump” and when her name was called. She sometimes cry, smiling and laughing, and her doctor said it’s also a good sign that her emotions are coming back.

She’s still bed ridden and unable to communicate regularly. She still have the involuntary muscle movements, spasm and orofacial dyskinesia.

Her doctor will continue to give her a month pf steroids.

It’s still a long road for her and for us and its a journey we are willing to do. Your help and support gave strength to us to make the first step. We cannot thank you enough to all your prayers and financial support. May God above bless you and your family 10 folds.

Thank you very much. God bless your heart!

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Update posted by Peter Louie Rubio On Nov 16, 2019
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I miss chezka. Get well soon my dear. I hope the IVIG treatment will make you better soon. God bless you Cheng.

Doriz Mae

Update posted by Nov 16

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We were discharged from the hospital 4 days ago and now home for recovery. Chezka still having the symptoms of the a-nmda-re disease. Those are: agitations, involuntary movements, dyskinesia, spasm and still bed ridden. We still feed her thru NGT. However, she now have a constant eye contact. She sometimes responds when asked to smile. Part of her clockwork is crying, laughing and smiling. Her doctor said it’s a sign that her emotions are showing which is good and also a sign of good Imessage. The road to recovery is still long and winding. With your continuous prayers and help, we know there’s a light at the end of the tunnel. We are very thankful to our God in heaven for the guidance, blessings and love that been and being given to Chezka. And also to all of you who’s been there since day 1, to pray to help us for the financing needs. We cannot thank you enough. May our God bless you more 10 times! Please continue to share the awareness of this disease. I hope someday soon, the modern medicine people could develop a vaccine to avoid this illness. Again, thank you very much! Our family love all of you.

Francis Lelis

Posted On Dec 12, 2019

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My daughter, Jahna Ko from Ruther, requested this humble share. Let the Lord's healing hand touch Franchezka Lelis... in Jesus' most Holy Name... be healed. Hallelujah! Amen.

rolando ko jr

Backed On Dec 09, 2019 Amount Hidden

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Anonymous

Backed On Dec 03, 2019 Amount Hidden

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get well soon young lady, my daughter had the same illness at 15 years old x

nicola Griffiths

Backed On Dec 03, 2019 Amount Hidden

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Anonymous

Backed On Dec 01, 2019 Amount Hidden

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Anonymous

Backed On Nov 30, 2019 Amount Hidden

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Anonymous

Backed On Nov 30, 2019 Amount Hidden

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It’s been a little more than a week after the last session of the 19 vials for IVIG treatment. Thank you very much to all who helped us to make it possible. Right now we can see a little improvement. She’s making some eye contact. The intensity of her agitation lower down and its time length reduced to 30mins which she used to have 1 hour. The frequency lower down a bit as well. She now, however, have this involuntary movements that lead her in biting her lips and tongue. That’s why our eyes are on her 24/7. Her doctor says that we have to wait and be more patient to see any improvement as this disease will take time to be cured. Your continuous prayers and donations will still help us to make the completion payment for her IVIG. Also for the hospital bills and doctors’ fees. We also wants this campaign to continue for awareness. This disease can disrupt one’s life and the entire family. I hope the genius people in medicine world could discover a vaccine to avoid this illness. Again, thank you very much. Our journey to this NMDA had just begun. And there still a long road ahead of us. And we will not let our baby take this journey alone. We will be with her all throughout. May God bless us and everyone who’s in the same place like us.

Francis Lelis

Posted On Nov 28, 2019

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Guest

Backed with ₱500.00 On Nov 24, 2019

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May God heal you and provide strength to your family.

Mary Jane Cunanan

Backed On Nov 22, 2019 Amount Hidden

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