Sophie Wherry is a incredibly brave 15yr old girl who has had challenges from the day she was born by emergency c sec at 30 weeks. Spending the first few months of her life in the neo natal high dependency ward she proved to us all that she is a fighter. She has Myotonic Muscular Dystrophy and Scoliosis. When she was 6 her Scoliosis became life threatening, her Spine had curved so much that the only option was Spinal surgery at Great Ormond Street Hospital. In the last 10 years there has been 60 trips to London, nearly 20 Spinal Operations and ongoing pain management and therapy. She has broken the titanium rod quite a few times and has needed lengthening operations as she has grown. In 2014 she had a final Spinal Fusion operation which went very successfully. Although the nerve damage this has caused means that Sophie is in a lot of pain all day even with extremely high doses of painkillers she no longer needs the plastic half body brace and has no risk of breaking the rods again.
In 2015 she was extremely poorly with pneumonia and now needs a operation for a Stomach Feeding Peg as she is too weak to maintain her nutrition. She has endured a Nasal Gastric tube and is now ready for the Operation.
It means that her Mum and Dad have to travel to Bristol and stay for a week at their own expense and with both of them being Disabled themselves this is going to be extremely challenging. Please support them and help with the costs this latest Hospital trip will incur.