Hello friends and family. In January 2019 I was diagnosed with cancer. This diagnosis was terinal pancreatic cancer then it was changed a month later to Cholangiocarcinoma and then changed yet again to Ampulla of Vater (a form of ampullary cancer) a very rare and difficult to detect gastrointestinal cancer (hence the earlier misdiagnosis). This has a better survival rate than pancreatic cancer. There was a tumour where the biliary and pancreatic ducts meet the duodenum (part of the small intestine). I had a pancreaticoduodenectomy better known as the Whipple procedure to remove the tumour. It was very serious major surgery that took 6 hours. It is as complicated as its name. All went perfectly and the tumour was removed. It was stage two. However, the pathologist found tiny but very aggressive cancer cells had spread to surrounding tissue and toone of my lymph nodes. So, chemotherapy is necessary. The stage has changed to stage 4.
Due to the rarity of this cancer there is still much that is not known regarding effective treatment, therefore there is no standard treatment but, I like and trust my doctors and my faith in God is absolute. The issue is my resources are completely depleted after not working for 6 ½months and I have a quite a journey ahead of me. It is amazing how life can change so dramically in the blink of an eye.
Treatment is very expensive.So, now I must put my pride aside and ask for help. I had hoped it would never come to this, but it has. I will need several additional scans, an intensive chemo regimine, special medication, constant blood tests, repeated visits with my oncologist and on and on. On my last visit to the doctor, I asked what are my chances of survival, his response was ‘I don’t know, this canceris so rare that not enough studies have been done’. The research that I have done supports this. Only 0.2% of all gastrointestinal cancers is Ampulla de Vater. That’s 2 in every 10,000.
I have no fear or worry because as with all things I have placed this in the hands of God. I remain happy and enjoy each day of this remarkable life He has given me but I have my moments. He will send a host of angels to assist me. They will come in human form and look just like some of you. I’ve already met quite a few of them, they came out of nowhere looking and sounding just like my brother, sister, cousins and friends. And more wondrous than the assistance and support they provided was the knowing that I live in an amazing world full of amazing, people who are actually angels in disguise. They reveal their true nature (unconditional love) just when you need them the most. Some of you may not understand this but I see this condition as an incredible adventure. There is no need to worry because God will give me no burden I cannot bare, so I will handle this ask for the strength and courage to handle with finesse and grace because regardless of the outcome;
From this only GOOD will come.