Amry – Cerebral Palsy patient need help and support

This fund is to help and support my beloved brother. His name is Amryhazel. We are from Selangor, Malaysia. Amry was born a healthy ordinary baby in year 1974. Unfortunately, when he was 6 months old, he had a seizure due to high fever. Since then, he no longer a normal baby. My parents did their best with the treatment. They even traveled across the country to find a cure for my brother. With limited medical solutions in my country at that time, my brother didn’t recover. Doctor diagnosed him to have Cerebral Palsy.

During his childhood, my parents sent him to a special school, Spastic Children's Association Of Selangor & Federal Territory (https://scasft.org/). There, he went for his education and physical therapy. He was doing great. Even he didn’t recover and become physically normal human, at least the center did help him to become independent. He can feed himself, he can take bath on his own. He can even move around the house by his own. Well, he didn’t walk by his feet but using his knees.

Saddened by the loss of our beloved mother whom passed away in 2006, he became slightly depressed. He hardly move around and usually isolating himself in his room watching tv on his own. This has been going on until 2016 when he became worse. He felt down from his bed and unable to move. He told me that his legs suddenly become weak. He wasn’t paralyzed though. He can moves his toes and some minor movement. It just his legs not strong enough to hold him. We went to see a doctor and were told he is not paralyzed. It was due to his muscle mass on his legs getting smaller and therefore not strong enough to hold him. From that day onward, I helped him to massage his legs on daily basis. Thankfully after couple of weeks, he recovered. Unfortunately it lasted for few months and it happened again.

Since I was occupied with my work and family, I can’t attend him anymore and by the request of my father, my brother went to live with my father and our stepmother (yes, my father remarried). There, they have few capable young men to help my brother with changing diapers and bathing.

By August 2019, my father passed away. My step-family refused to take care of my brother. I have no choice but to take my brother and live with me.

Here lies our problem and why we need the financial support. Me and my brother, we are in our 40s. There are four of us. My brother is the first son. I’m the second. Third is my sister in her late 30s and my younger brother in his late 20s. All of us married except for my elder brother. All of us is having a hard time with our financials. I can’t look after my brother while supporting my family. There were times his diaper wasn’t changed for more than a day. This is because I was away for work and didn't come back days later. My wife will cook and my son will feed his uncle and that’s about it. They can’t help changing the diaper or give bath due to my brother’s weight. Myself having a hard time carrying my brother to the bathroom each time due to my age and constant lifting. The rest of my siblings either they stayed far away and with their own family responsibility. That left me alone to deal with my brother's routine.

What I wish for is for my brother to get well and become independent like before. This can be achieved with series of physical therapies. I’m planning to send him to a rehab center where he can undergo the treatment. This does not come cheap. I might need a motorized wheelchair for his movement around the house and specially modified transportation to commute him to the rehab center. According to the doctor, his muscle mass is in bad shape. It may take longer time for it to recover back to its normal condition. So I plead to all the generous souls out there to make this wish come true. At the same time, we did apply for government aid and so far they given us a monetary support of MYR350 (USD84) per month.

I’m open to any aids available and not just monetary. If any of you is nearby our place, I welcome your visit and look for yourself our situation. If you wish to chit-chat with my brother, you can also contact him directly. He is available on Whatsapp. Do take note, be patient with him because from time to time, he can lost his voice. He can’t converse very well in English but he does understand it.

To summarize the help we need:

1. Daily care (diapers, bath and healthcare)
2. Transportation that can accommodate wheelchair
3. Motorized wheelchair to move around the house
4. Monthly cost for rehab center (treatment and physical therapy)

Again, I would like to highlight, we accept anything that benefits my brother and not solely monetary. You can come and visit us anytime but do give me a heads-up so I can take leave from my work and help with explanations.

Thank you so much for reading this. I much appreciate all the help coming for my brother and to make his life cheerful and wonderful.