Allow hope and light to continue on by helping and being part of Joann's journey on overcoming the difficulties of her condition. She has a very rare condition called MARFAN SYNDROME. It is a genetic disorder of the connective tissue.The degree to which people are affected varies.
However, in Joann's case, it is severe. She has SEVERE SCOLIOSIS which needs surgery and a RHEUMATIC HEART DISEASE and MITRAL VALVE PROLAPSE at such a tender age. She is also born with NON-INTACT LENSES SO SHE CAN ONLY SEE PARTIALLY. She also has a NARROW PALATE which contributes in her difficulty in breathing as it narrows also her sinus.
This is how severe her scoliosis is:
The doctor said, if left untreated, her lungs and heart will collapse. Joann is currently 11 years old turning 12 on June 4. She is nearing her growth spurt as she enters puberty. When this happens, her spine will curve even more and will result in the collapse of her heart and lungs.
Despite all of this, Joann remains to be the vibrant, strong, and cheeky young girl that she is. She is a real fighter. She brings light to the whole family. Allow me to share with you my experience as I accompanied her one time in the hospital with her tests: I cannot help but feel awe as I watch her calmly undergo a whole tedious process of procedures such as 2D echo, ECG, ultrasound, treadmill stress test, etc. All in one day.She even managed to strike a peace sign ✌ while undergoing a whole abdomen ultrasound.
She is a very strong girl. She is beautiful both inside and out. May the Lord and her angels continue to guide her and be with her everyday.
She is currently undergoing a lot of treatment and needs help in funding to alleviate her condition.
She needs funds in her medicines for her heart condition as well as for her spine jacket and eventually for her spine surgery. She also needs assistance in her eye surgery as well as the bracing of her palate and dental needs.
We have hope. And We believe that love and compassion is stronger than anything else in the world.
Kindly send Joann hope and light by helping us raise 120,000 PHP for her medical needs. If we can raise more to help cover medications and caregiving expenses, it would be a tremendous blessing. Thank you so much from the bottom of our hearts!
To donate directly to our account, please kindly see below
Name of bank: BPI
Account name: Rachelle Ann T Fabula
Account #: 8929071795
Kindly send us a message after making a deposit or wire transfer so we know its from you. You may e-mail me at: [email protected] or use the message link on this campaign site.
Thank you so much!