ALEXANDRIA KAHEALANI CUMMINGS

  • US$4,575.00
    Donated So Far
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To our Friends and Family:

Thank you for taking the time to find out more about what is happening with Mallorie and Liko's daughter who is currently getting ready for her amazing life, in her momma's belly! 

Mallorie and Liko are expecting Alexandria Kahealani Cummings on 07/23/2013. On March 22, 2013 Mallorie went to have a fetal echocardiogram (scan of the baby's heart) with Dr. Mehra at SutterHospital in San Francisco. The Dr. diagnosed Alexandria with Tetrology of Fallot with Pulmonary Atresia, for those of us who aren't Dr.'s it is a congenital heart defect, Tetrologoy of Fallot is understood to have at least 3 out of 4 anatomoical abnormalities of the heart. The ones that can be seen so far are:
Overriding Aorta
Ventricular Septal Defect (VSD)
Pulmonary Atresia (complete block of blood outflow tract- This meaning they can't find the valve, it may have not developed).

For the future while in Alexandria is in Utero; she will have a handful of echocardiograms done to get a clearer picture of the heart as she grows and develops, and to give the Dr.'s more information. 

On July 17, 2013 at 39 weeks Mallorie will be induced at Stanford Hospital in which Alexandria will immediately undergo Cardiac Catheterization, which is an invasive procedure that will be followed by the first of possibly multiple open heart surgeries. There is a slight possibility that her first surgery could be a month or two after birth but that will be based on her condition when she is born. Either way she will be in and out of the hospital, obviously with a long stay when surgery is performed. 

This website has been created as a place to get updates on Alexandria and show your love and support of Liko and Mallorie in this tough time. 

As many of you know Mallorie and Liko have a family of 5, the two of them, Pearce, Violet and Jace. Part of my goal in starting this website is to help take the extra stress of financial burden away. Alexandria will have to be in the hospital for what will more then likely be a minimum of a month and unknown discharge date, Mallorie and Liko will likely not be working, and be down in Palo Alto all the time. If you would like to donate to them to help cover medical, home and and other financial expenses during this very pressing time, please feel free to donate by clicking the link to PayPal.

With enough money raised, Mallorie and Liko have high hopes and have been in contact with a representative from the American Heart Association to start a fund for families who are in the same position as they are. This fund would give families money to help support their medical and living expenses while watching over their child in the hospital. 

Mallorie and Liko need our support now more then ever and they wanted me to let everyone know how much the appreciate all of your prayers, thoughts and support.

Organizer

Donors

  • Jeri and Ed McKeeken
  • Donated on Jan 29, 2014
  • We a praying and sending positive thoughts for your journey with your beautiful little angel

$150.00
  • Guest
  • Donated on Dec 04, 2013
Amount Hidden
  • Tony Sinprasert
  • Donated on Nov 28, 2013
  • Sending positive thoughts and prayers!

Amount Hidden
Nov 28

Surgery Update

Update posted by Jgiampaolo at 01:59 pm

Hi everyone, Sorry it's been awhile since the last update, we have just basically been waiting at home for the surgery, which finally happened yesterday.  Alexandria went in at 8am yesterday, 11/27, and surgery last 13 hours.  By far the longest wait in our lives.  She is currently in the. . . . .

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0
Jul 04

July 4th

Update posted by Jgiampaolo at 09:29 pm

Happy 4th of July everyone! Sorry it took so long to update, but we have had an extremely busy week. We welcomed our beautiful girl into our world on Saturday, July 29th at 2:49AM. She weighed in at 6lbs 4oz, and was 18.75 inches long. I ended up being induced. . . . .

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0
May 10

Appointments yesterday at Stanford

Update posted by Jgiampaolo at 12:16 pm

Hi everyone, Yesterday was quite the eventful day for Liko and I. We went down to Luciele Packard Children's Hospital at Stanford University for four different appointments! First, we met with Dr. Frank Hanley in the morning. I have heard other doctors describe him literally as "God" and that this. . . . .

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0
Apr 27

Appointment with Dr. Behera

Update posted by Jgiampaolo at 12:17 am

Hi everyone! Today we had a fetal echocardiogram (ultrasound of Alexandria's heart) with our Pediatric Cardiologist, Dr. Sarina Behera, from San Francisco. This appointment was basically a follow-up from our first echo with Dr. Behera, to check and see if we could get a better look at Allie's heart since. . . . .

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0
Apr 16

Appointment with Dr. Jimenez- 4/16

Update posted by Jgiampaolo at 04:30 pm

Hi everyone, Thank you so much for taking the time to read our page. We can't express how much the support means to our family. Today, I had a routine appointment with my regular Doctor, Dr. Jimenez. I haven't been feeling too great lately, so he decided to run a. . . . .

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Donors & Comments

38 donors
  • Jeri and Ed McKeeken
  • Donated on Jan 29, 2014
  • We a praying and sending positive thoughts for your journey with your beautiful little angel

$150.00
  • Guest
  • Donated on Dec 04, 2013
Amount Hidden
  • Tony Sinprasert
  • Donated on Nov 28, 2013
  • Sending positive thoughts and prayers!

Amount Hidden
  • Michele Wolpe
  • Donated on Nov 26, 2013
  • All the best with the little one!

$100.00
  • Amy Ahlstrom
  • Donated on Nov 25, 2013
Amount Hidden
  • John Pratt Booker
  • Donated on Nov 25, 2013
  • Ward, Heart and prayer with your family. I wish there were a word I could reach for. I thought of you just recently when a Chicago song was playing. We don't know each other very well at all except a school campus and mutual friends a long time ago. But I will think of you and your family daily - in prayer and in love for your dear child. John Pratt Booker

$100.00
  • David Julian
  • Donated on Nov 25, 2013
$100.00
  • Kelley Keogh
  • Donated on Nov 25, 2013
$100.00
  • MIKE AND KATHY
  • Donated on Sep 20, 2013
Amount Hidden
  • Darren and Karen McKean
  • Donated on Jun 29, 2013
$100.00
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US$4,575.00
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