Aitame Eevat

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Update posted by Eeva Tiivas On Nov 04, 2019

The following thoughts have been written by Eeva's husband Erki.

(EESTIKEELNE VERSIOON ON ALLPOOL)

Dears,

I wish to express my gratitude and give you an update on what has been happening over recent days...

So much has changed since that summer day when we found us on this road of fighting for Eeva’s life. For me it has been time of profound reading, consulting with different doctors, searching for additional treatments that people with glioblastoma have used and survived. Not much time to spend with my children, many free time activities have been postponed for the future. My love for my wife and children keeps me going.

I am ever so thankful to people who have decided to give their helping hand. Our parents take care of household chores and help with children, my father has collected a remarkable amount of information on health issues.

Friendships have reached the magnitude I could never have imagined. People we do not know phone us, send letters with their knowledge and thoughts and best wishes, compassion and prayers. I am in tears just because of how moving all of this is.

I am so thankful to the doctors who have their hearts in helping Eeva, who are ready to consider and use additional and not yet acknowledged possibilities that have brought some people back to life. All the possible side effects are a trifle compared to the fate that expects those who remain waiting... It is so important to have hope. We don't know how it will eventually turn out, but we are doing absolutely everything we can to save Eeva's life.

All materials and all discussions with doctors, specialists and people with necessary knowledge have given ideas and hope. I trust the Creator.

I have never in my life experienced such an immense energy and how it connects and empowers. Despite of the sad background it is such a great feeling…. so powerfully that I cannot describe it in words... this is the power of unconditional love. As strange as it may sound, I'm happy and grateful for this feeling!

Eeva's story is complicated because the illness does not have one specific cure. Hope is found in a combination of conventional and alternative medicine that has successively cured patients, though their number is still minor. With our active attitude and with the help of doctors we wish to give our contribution in finding cure that would help Eeva and later many others.

We currently know of two alternative methods that have helped people to recover. One is using medical cannabis that is extracted from certain type of cannabis plant, administered orally, first by holding a small drop under the tongue and then swallowing it. Human endocannabinoid system activates the curing process. We have already been to the USA to get the cannabis treatment, but unfortunately the trip was cut short because Eeva's health deteriorated fast. Too much time had passed since the operation in August. We had to urgently return to Estonia to be ready for the second operation.

Nevertheless the trip was useful because while in the States we received information about another alternative method - medicine cocktail. The strategy of such cocktail is adding many different medicines that at first sight have nothing to do with cancer, on top of conventional cancer treatment. It creates synergy effect that leads to the retreating the cancer.

There are many mechanisms that make such medicine cocktail function and every person needs a personalized cocktail.It is a big challenge to find a proper combination. On top of that the content of the cocktail must change in time depending on which state the cure currently is. There are about 10-15 medicines taken daily. Eeva's exact combination is still being discussed. The speed of the illness does not leave much time for testing. There will be a positive change or not. It's all so complicated because there is no universal truth. I wish to share the link to a documentary that explains the strategy of the medicine cocktail https://www.survivingterminalcancer.com/

The whole road has been both time and money consuming. We have exhausted our family’s financial possibilities within four months, but the journey of fighting cancer is still ongoing. That is why we have turned to public and asked for help.

Dears, looking at Eeva’s donations bank account was very emotional! Our gratitude is immeasurable! Today the donations have exceeded 74 000 € which is 74% of the target.

Our main expenses are connected to what was described above: medicines, including the medical cannabis, necessary trips for cure abroad and accommodation there, and for the additional research. Some expenses will be connected to maintaining Eeva's quality of life, therapy and rehabilitation. An honest answer is that I don't know the exact amount we will need during this journey. 100 000 € was a sum estimated by people who have experiences in a similar situation before. The potentially excessive amounts will later on be donated to the benefit of people with similar diagnosis. We will keep you posted.

How long will our journey be? Estimated time could be from half a year to a couple of years. The recession of cancer might even happen quite fast but that does not mean that the illness has been cured, we need time to make it all last. We are keeping track at all the decisions that are made during this journey and are trying to make the best choices for Eeva's welfare.

There have been so many questions from the day we went public and I have tried to answer as many as possible and I apologize if there are some left unanswered. I just have not managed yet. Me and my friends will try to answer everyone who has turned to us. We are thankful to everyone who has volunteered to help us with their knowledge, means or actions. In so many cases we have received additional valuable information.

I have been away from work for four months now. My clear priority is to help Eeva. Anything else would not be an option to me. This choice has had its cost, but I trust life and hope that the customers of my small company value our work and find us nevertheless. I am so grateful to the dedicated employees of our company, who try hard and cover for me as much as they can.

Our experience has made us believe that combination of different spheres is most helping -conventional medicine, naturopathy, spiritual studies, dealing with consciousness and emotions, nutrition, food supplements, physical activity, sleep, etc.-Everything has its crucial role. For every person the balance of factors is different.

Today is Monday and Eeva is having the operation that will last from early morning till the afternoon. We are fully concentrating on it and hope that the operation will succeed as well as possible.

Thank you everyone for thinking of Eeva and supporting her through your thoughts!

It is priceless for our family. Thank you!


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Update posted by Eeva Tiivas On Nov 03, 2019

Allolevad mõtted on kirja pannud Eeva abikaasa Erki.

(AN UPDATE IN ENGLISH WILL BE ADDED SOON AS WELL)

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Head inimesed! Allolevalt soovin edastada oma tänu, anda ülevaate heade annetajate panusest ja selgitada ravivõimalusi.

Raske on üles lugeda kõike, mis me elus on alates suve algusest muutunud, milliseid mõtteid ja küsimusi tõstatanud, milliseid otsinguid algatanud, milliste leidudeni viinud ja taas uutele otsingutele saatnud. See on niivõrd mitmetasandiline teekond, mille lahti kirjutamine vajaks eraldi aega ja kohta. Lastega olen viimastel kuudel saanud kahjuks vähe koos miskit ette võtta, igasugused vabaaja tegevused on jäänud tulevikku ootama. Mind kannustab armastus oma naise ja laste vastu.

Olen lõputult tänulik inimestele, kes on otsustanud ulatada abikäe! Meie vanemad, kes aitavad kõike laste ja majapidamisega seonduvat igapäevases rütmis hoida. Minu isa, kes on kogunud muljetavaldava koguse tervist puudutavat infot. Sõbrad, kelle sõpruse suurus on saavutanud dimensiooni, mida ma enne ettegi ei osanud kujutada. Meile tundmatud inimesed, kes helistavad, saadavad kirju oma teadmiste ja mõtetega. Ja nii suur hulk häid soove, kaasa elamist ja palveid. Mul on kõige rohkem silmad märjad just selle tõttu, kui liigutav see kõik on.

Ma pole kogu elu jooksul kogenud niisugust mõõtmatut energiat ja seda, kuidas see ühendab ja väestab. Vaatamata kurvale taustale on nii eriline seda kogeda. Tunnen seda nii jõuliselt, et ei oska isegi kirjeldada… see ongi tingimusteta armastuse vägi. Nii kummaline kui see ka ei tundu, olen õnnelik selle tunde pärast!

Olen väga tänulik arstidele, kes on südamega asja juures, kes on valmis kaaluma ja kasutama täiendavaid, veel mitte tunnustatud võimalusi, mis mujal maailmas on inimesi elule tagasi andnud. Kõikvõimalikud kõrvalnähud on ju köömes selle saatuse kõrval, mis ootab neid, kes midagi ei tee... Peamine, et oleks lootus. Ka meie ei tea, kuidas meil lõpuks läheb, aga me teeme absoluutselt kõik, et Eeva elu päästa.
Läbi loetud ning arstide, spetsialistide ja kogemustega inimestega koos läbi töötatud materjalide maht on jõudnud viiekohalise lehekülgede arvuni. Katsun kõige juures säilitada tunnetust, mis suunas vaadata, kelle poole rohkem kõrva teritada. Usaldan loojat.

Eeva loo teeb keeruliseks asjaolu, et sellele haigusele ei ole veel kindlat ravi välja töötatud. Küll aga on kombinatsioonis tavameditsiini ja alternatiivsete võimalustega järjest enam patsiente tervenenud, kuigi nende arv on endiselt väike. Soovime oma aktiivse suhtumise ja koos arstidega tegutsemisega anda oma panuse ravi leidmisele, mis aitaks Eevat ja edaspidi ka teisi.

Meile on praeguseks teada kaks alternatiivmeetodit, mille abil inimesed on tervenenud. Üks on ravikanepi kasutamine, mispuhul suukaudselt manustatakse kindlate omadustega kanepisordist ekstraheeritud täiskontsentreeritud kanepiõli, esmalt seda keele all hoides ja siis alla neelates. Inimese endokannabinoidsüsteem käivitab seepeale ravivad protsessid. Kanepiraviga seoses oleme juba käinud USA-s, kuid kuna minek jäi liiga kaugele peale esimest operatsiooni ja Eeva tervis halvenes kiiresti, tuli erakorraliselt tagasi tulla.

Sõit ei läinud siiski luhta, sest USA-s olles jõudis meieni info teisest alternatiivmeetodist – ravimikokteilidest. Ravimkokteili strateegia kätkeb endas lisaks tavaravile selliste ravimite kasutamist, mis esmapilgul ei oma vähiraviga otsest seost. Küll aga viib ravimite koostoimes tekkiv rünnakusünergia vähi taandumiseni. Neid mehhanisme on väga palju, mille läbi ravimikokteil toimib ja igal inimesel on need erinevad, mistõttu sobiva lahenduse leidmine on suur väljakutse. Lisaks muutub kokteili koosseis ajas, sõltuvalt sellest, millise ravi etapiga on tegu. Ravimite arv, mida igapäevaselt võetakse, on 10-15 kandis. Eeva täpne ravimite komplekt on alles kokku leppimisel. Haiguse väga kiire kulg ei jäta katsetamiseks pikalt aega. Positiivne muutus kas tuleb või mitte. See kõik on keeruline, puudub üks tõde. Soovin siinkohal veelkord jagada linki dokumentaalfilmile, mis ravimikokteili strateegia hästi lahti räägib https://www.survivingterminalcancer.com/ (film on inglise keeles).

Kogu see teekond on olnud nii aega kui raha nõudev. Oma võimalused oleme nelja kuuga ära kasutanud, kuid teekond on veel pooleli. Seetõttu pidime ka avalikkuse poole pöörduma.

Kallid inimesed! Täna hommikul Eeva ravirahade pangakontot vaadates oli raske tundeid tagasi hoida. Meie tänu igaühele teist on nii suur! Tänaseks on kogunenud juba üle 60 000 euro ehk 2/3 hinnangulisest eesmärgist (täpsustuseks, et koos siinse keskkonna annetustega, on 3. novembri õhtune summa üle 74 000 euro). Meie peamised kulud ongi seotud kahes eelmises lõigus tooduga: ravimite hankimisega, raviks vajalike sõitude ja majutusega ning täiendavate uuringutega. Osa kulusid tekib ka seoses Eeva elukvaliteedi säilitamisega, hooldus- ja taastusraviga. Aus vastus on, et me ei tea, milline on täpselt see summa, mis lõpuks kulub. 100 000 eurot on suurusjärk, milleni jõudsid mitmed inimesed, kel sarnaste olukordadega varasem kogemus. Kindel on see, et kui kogunenud summast midagi üle jääb, annetame selle edasi sarnase diagnoosiga inimeste hüvanguks. Anname sellest aja jooksul teada.

Kui pikk on raviteekond? Hinnanguliselt võib see ulatuda poolest aastast mõne aastani. Väga lühikese aja jooksul tekkida võiv haiguse taandumine ei tähenda veel selle võitmist, eks aeg annab arutust. Fikseerime oma tegevusi, ravivalikuid ja Eeva käekäiku ning katsume sellest järeldusi teha.

Ma tahaksin juba esimesest päevast peale jõuda igale siin küsimuse esitanule vastata, aga neil päevil veel ei jõua. Meid abistavad inimesed aga hoolitsevad, et esimesed vastused saaksid saadetud ja kindlasti kui aeg küps täiendame neid. Samas oleme tänulikud kõigile kes on vaevaks võtnud meid oma teadmiste, vahendite või tegevusega aidata, ise oma abi pakkudes. Mitmel puhul oleme avastanud miskit väärtuslikku.

Ma ise olen suures osas töölt eemal olnud juba 4 kuud. Olen teinud selge valiku Eeva aitamise kasuks. Teisiti ei saaks. Sellel valikul on aga olnud oma mõjud, kuid ma usaldan elu ja loodan, et kliendid minu ettevõtte tööd hindavad ja meid kõigest hoolimata leiavad. Olen südamest tänulik meie pühendunud töötajatele, kes pingutavad ja katavad jõudumööda ka minu tegevusi.

Üks asi, mida oleme tugevalt kogenud, on vajadus valdkondi ühendava teadmuse koondamise järele, kus ei tähtsustataks ühte üle teise. Meditsiin, loodusravi, vaimne ja hingeline õppimine, teadvuse ja emotsioonidega tegelemine, toitumine, toidulisandid, kehaline aktiivsus, uni jne – kõigel on oluline roll. Iga inimese puhul võivad tegurite kaalud olla erinevad. See peaks patsienti ja pere hakkama ümbritsema sestsamast hetkest mil nad diagnoosi said. Jääks ära suur osa otsinguist mida oleme pidanud läbi tegema. Inimesed võidaksid aega ja elusid.


Praegu ootame esmaspäevast operatsiooni, mis kestab varahommikust pealelõunani. Keskendume sellele ja loodame, et lõikus õnnestub nii hästi, kui see võimalik on.


Aitäh kõigile, kes te Eeva peale mõtlete ja teda läbi selle toetate! Meie perele on see praegusel ajal hindamatu.


Erki - Eeva, 10.2019

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