In June 2007 I was diagnosed with Renal Carcinoid Cancer - a tumour that effects 1 in every 130 million people. At the time of diagnosis I was terrified and thought I would die. I had my left kidney removed and after that I tried to do all that I could to learn from my tumours and to heal. In 2011 tumours returned and at one point there were 8 tumours growing but the numbers waxed and waned, as time went by. I feel very strongly that I can heal myself completely but that certain behavioural and emotional habits are still in the way and continue to keep my tumours growing. I acknowledge that the 7 cm tumour where my old kidney was and the other smaller tumours, have the capacity to make me very sick and kill me. In addition I have been living with life threatening Carcinoid Syndrome, which makes life very uncomfortable on a daily basis. It also has the capacity to shut down any of my organs due to excessive hormone secretions - which play havoc with normal functioning and cause fibrosis. Therefore, after 9 1/2 years of living with these tumours, I have decided to have conventional treatment.
I am a single dad and my 17 year old son cannot remember a time when his dad did not have tumours. Toa has endured a great deal in his life, including 2 open heart surgeries of his own, 2 surgeries related to ear tumours, my illness (and problems with a Hernia and surgery) and his mum's brain tumour. I wish I could do what I used to do with my son but I don't have the strength or the energy any more. Life has been tough for Toa but he is a fine young man and I am very proud of him. I look forward to being around to see him raise his own family !
Over the years I have explored all manner of alternative therapies (which I realized were both myopic and narrow minded) and the few conventional treatments that are available for Carcinoid Tumours in general. Because my tumours are so rare, there is no 'standard treatment' which offers a cure or 'good result'. There are only a handful of living patients and those who have had treatment and had the best results, have had the one treatment that is available to me here in Australia.
I will be starting treatment in Melbourne (3 hours away) in December and my treatment will continue for 6-8 months, pending the ongoing results of treatment. If after a year, if I require further treatment, I will be considering a clinical trial with minicell technologies that is based in Sydney. That treatment is currently unavailable to me until I have exhausted all options. So after digging my heals in for almost a decade, it's time I bit the bullet and had faith in western medicine's capacity to heal.
The funds I am asking for will help to cover accommodation, transport, food, specific types of PET scans not covered by medicare and normal bills that occur during that time.
In helping me, you will also be helping my son's life and giving us both the one thing we need - each other !